August 5, 2015 at 2:59 am #88468mbachiniModerator
Oh how I love all these connections being made! You go girls!August 4, 2015 at 5:40 pm #88467gavinModerator
If you have emailed Susan through the website then your email go to the email address that Susan used when registering with the Foundation. Then she will be able to email you back as normal email.
Hope that helps.
GavinAugust 4, 2015 at 3:11 pm #88466christine1015Spectator
I sent you a forum email with my email address but not really sure how that works. You can email me at firstname.lastname@example.org!
Thanks!July 31, 2015 at 3:24 pm #88465
Susan, this is such wonderful news to wake up to about you and chemo! You GO girl! That CC is NOT going to talk back to you, it should run like heck, What a good report and just continue to kick it to the curb!!!!July 31, 2015 at 11:16 am #88464
Christine, email me. I’d love to talk to you. I’m having ” remarkable” results with this trial. That’s a direct quote from Dr Kemeny 2 weeks ago. My surgery to implant the pump was April 8, and my largest tumor has shrunk from 12/12/8 cm to 7/5/5cm. Latest blood work received yesterday has my ca19-9 from high 200’s pretreatment down to 48 yesterday. I understand more and more everyday how chemo is different for everyone- reactions, amounts, side effects. I also am understanding more and more about how our emotions and attitudes affect our body’s cooperation with treatment. My last pump infusion 2 weeks ago was cut in half because of kidney and liver levels, but it’s still working. It can be frustrating when you think you’re not getting 100% of what’s available, but realizing that the Dr. is first and foremost prescribing for You, keeping you healthy and safe through this process? That’s good medicine. Can’t wait to connect with you. Have a great day today!July 30, 2015 at 1:28 pm #88463christine1015Spectator
I just saw this post. I am in the trial at MSKCC too!! Would love to chat with others on it! I just got back from NYC last night as I live in Cincinnati.
I just had the pump inserted a month ago and have only had one round of the FDUR and the Gem/Oxi. I was supposed to have the next round yesterday and my liver function was already too low to get it. I was only able to get the Gem . I am so frustrated.
Glad to find a few others going through this too!
ChristineJune 29, 2015 at 10:53 pm #88458
FANTASTIC, Sherri and Susan. Wow, you ladies didn’t waste any time. LOVE it!June 29, 2015 at 10:05 pm #88459marionsModerator
So glad you had the opportunity to meet in person. Nothing beats the personal contact. Hope you can do this again and if you do then please send us a picture.
MarionJune 29, 2015 at 9:37 pm #88460
“Here’s to the ladies who lunch…..everybody…rise!!”
What a thrill to meet Sherri today over lunch downtown in Richmond! What a comfort to know someone else with this crazy disease. I must say the shrimp and grits were delicious, but the company and discussions were the best! Staying positive so I can positively stay!
I hope others can find someone close to your location. And if any of you in CC -land are EVER near Richmond, let us know and we’ll celebrate over a meal with you!June 27, 2015 at 8:50 pm #88450gavinModerator
Welcome to the site, although sorry that you had to find us all here. Thanks for sharing everything that has been going on with you and a 40% reduction after your 1st treatment, that is excellent news indeed! Keeping my fingers crossed for the continued reduction with treatment and looking forward to hearing more from you about everything.
Please keep us updated on everything and know that we are here for you.
My best wishes to you,
GavinJune 27, 2015 at 3:33 pm #88451
Dear Susan, WHOPEE! I always get so jealous when I think of any of you meeting. Wish we could all meet! It is a wonderful feeling! I think Matt and JulieT are meeting at Mayo. This is all music to my ears. I just know you and Sheri will pull it together! Fantastic!June 27, 2015 at 11:41 am #88452
Thank you all SO much for the warm welcome! I would LOVE to get together with any or all CCfighters near me! Sheri, I will email you today, and let’s plan to get together soon. Matt friend requested me on FB, and I know he’s at Mayo, but hopefully we can meet when he returns. And the other one in RVA? I can’t wait to meet you all. This forum is great. Thanks to all the moderators and ‘caregivers’ of this site.June 27, 2015 at 12:45 am #88457mbachiniModerator
I would also like to welcome you here. Congratulations on 40% reduction! That is so inspiring! Please keep us posted of your results and details of your trial. I too have been in a trial for the past 3 years and always get so excited to hear of others doing well in other trials, because that just means more hope for the future of this disease!
I also hope you get a chance to meet up with the others in your area. There is such strength in numbers, and when you meet face to face it is such a strong connection that I feel it just adds so much power to your fight!
Keep in touch and take care…..hugs and prayers coming your way.
MelindaJune 26, 2015 at 10:16 pm #88456sherriMember
I hope we can too. I know how much it meant to me when Matt met with me and helped me so much on what I needed to do. If we do meet I will be sorry Matt won’t be here to be apart of it and to share his knowledge but he is at Mayo beating this cancer and I’m praying he does.
I’ll let you know if we get to. Thanks for all your encourageing posts that I read everyday. I don’t post a lot but I do read everyone’s post. This site is a wonderful place to increase your knowledge of cc and also to know you are not alone and that you can fight and people have been given more time and some have beat it.
Happy weekend to all,
SherriJune 26, 2015 at 4:18 pm #88453
Dear Sherri, it would be fabulous if the 4 of you could get together. There is no feeling that can compare to members meeting each other and I speak from experience. To actually meet someone in the same situation is so powerful. Wishing you the very best.
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