Newly diagnosed

Patricia, welcome to our CC family. I am sorry you have reason to find us, but am so glad you did. My first bit of advice is that, yes this is a scary diagnosis, but please ignore the statistics and what you may read on line at other sites. CC is a rare disease and many medical practitioners are not knowledgeable about the las test research and treatments offered. Many patients on this site are doing far better than the statistics would suggest. My second piece of advice is to make sure your family member is being treated by a center that has expertise in CC. There are a number of such centers listed on the main part of the CC Foundation website. Best wishes to your family.

Debbie