Newly diagnosed father
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Jennifer, I am so sorry to hear of your sad loss, I know how you feel as my precious Dad passed away 8 weeks tomorrow.
Sending love to you and your family x
Thank you to everyone for their kind words and encouragement. It has been tough and it’s a long road ahead but I know we’re all going to be ok!
Jennifer – I am so saddened by the news of your Dad’s passing…..you will have him in your heart forever. – Nancy
Dear Jennifer and family, I am so very sorry to hear about your Dad. You know that with what little options he had he is now at Peace. My prayers go out to you all.
When someone you love becomes a Memory, the Memory becomes a treasure.
Your Dad, through your memories
Will never leave you.
You will feel his tender care from now on
As a warm serenity in your heart.
Hoping you always feel the encouragement
Of his love, and hold in memory
All the happy times you spent together.Dear Jennifer,
I am so sorry to hear of the passing of your dad, please accept my sincerest condolences. I too lost my dad to this disease and I know the pain that you are feeling right now. Please know that my thoughts are with you and your family right now.
Gavin
Dear Jennifer,
I am so sorry your dad lost his battle with this disease so quickly. My husband passed away 2 1/2 years ago and he also went very quickly, so I do understand what you and your family are going through and feeling right now. It isn’t easy, but try to be comforted some by the fact that he did not suffer for very long and is now in a better place, pain free and beyond the reach of this terrible disease. He may be gone physically, but his spirit is still surrounding you. He will always be with you in your heart and memories. Know that I am thinking of you and your family and will keep you in my thoughts and prayers.
Love & Hugs,
Darla
Hello everyone,
Just wanted to give an update on what happened with my dad. He went back to his onco the next day (Tues) for more fluids. His creatinine had gone up even more and he had to be admitted to the hosp for fluid therapy to see if they could get his kidneys working again. Unfortunately, his kidneys continued to worsen and could not be fixed. Therefore, he could not receive chemo and his doctor gave him a prognosis of only a few days to live. He continued to decline into the weekend and got to a point where he was non-responsive. My boyfriend, my sister, her husband and I spent the night in his hospital room on that Saturday night because we knew it wouldn’t be long. He passed away peacefully on Sunday around 11:30am surrounded by his family with my mother and me on each side of him. It is very devastating that we lost him so soon and a very tough time for our family. We love him very much and are very sad that he lost his short battle with this devastating disease.Jennifer, I am so sorry to hear of dad’s downturn. I am anxious for Wednesday so you can get some proper answers and hopefully some plans to make dad feel much better. Sometimes I think the stubborness comes from fright so I feel that part of it may be attributed to the CC. You know, ‘if I don’t go there, then its not happening’. Hang in.
Thanks to everyone for the advice. Quick update: My dad went downhill over the weekend. No energy at all, all he does is try to sleep and won’t even sit at the table or sit up to eat. He is still very yellow and painful. We made him call his dr answering service yesterday and they had him come in this morning. My mom said his oncologist says all his symptoms are because of the cancer….well duh! So he got IV fluids and some pain med and med for his appetite. His creatinine was 4.4 from dehydration so they’re having him go in tomorrow for fluids too. He also started having diarrhea. We are trying to make him drink and eat more. But I am still very worried because he looks so bad and he is very stubborn and frustrated so it’s hard to make him do anything. I am just hoping we can get some good information from our appointment on Wed in Charleston…
I just read over your questions and everyone has great idea’s . Find out what kind of stents your father has, steel or plastic? Kevin has 2 15 inch plastic ones in his bile ducts. He ended up back in hospital 4 hours after procedure with pancritis, I know I didn;t spell that right, sorry. He couldn’t eat for 7 days only iv fluid his stomach was so bloated as were his ankles. Watch you father closely. This is definatly a one day at a time thing. BEst of luck to you.
MissyMy wife acted as my advocate and kept a detailed notebook with Q/A’s etc. It’s amazing whenever we now look back at the notebook how many details have disappeared from both our memories in less than two years from the events. I would also suggest requesting/retaining copies of all test results. I became pretty good at reading most blood test results over time. My preference is the notebook, BC it automatically keeps stuff in chronological order, and is compact. Whenever I have a followup appointment, we always note any questions ahead of time … it saves the doctor’s and our time, and allows more useful appointments. Kind of like going to your accountant with everything organized, rather than a shoebox full of receipts.
Pam’s thought about a spreadsheet for meds is great. I keep two. One is meds history showing all, and adding new with the date/dosage. I keep all old entries, just format them with a line through the text if canceled or modified. The second one is only current meds, with Rx number and dosage. When you’re taking more than a few meds, it’s a real convenience for me and the doctors.
As you move through time, you can count on support here and some questions and concerns answered. Good luck.
@Pam – I keep a notebook too. It’s a great idea an really keeps things organized. (Something I can always use help with.)
Jennifer. I would also like to welcome you to our place. Hopefully someone from SC will write in soon. You might also want to peruse the thread established by our kind members. Google, top right, enter Physicians and treatment centers.
Good luck and try to stay positive. You don’t have all the information yet.
We have seen some incredible responses and I am wishing for the same for your Dad.
All my best,
Marion
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