My father in law was just diagnosed with an extra hepatic CCA with local invasion of the left lobe and mets to the left lobe and caudate.
He lives in Holand, Michigan. He went to PCP on 10/11 for symptoms of abdominal discomfort, pasty stools, itching, and jaundice. Labs showed a bilirubin of 9. CT done on 10/14 showed tumor at confluence of left and right ducts, extending up to the left lobe.
My wife is an ENT and I am a Trauma/critical care/general surgeon practicing in Shreveport, Louisiana. We made calls and were able to get into see Dr. Vauthey at MD Anderson. He got biliary drain. And now seen by Dr. Javle.
We are currently waiting on his bilirubin to get below 2 to start chemo. Dr. Javle made mention of a clinical trial at MDA, the addition of Abraxane to the standard Gem/Cis regimen.
I was posting to hopefully see if any other folks have any experience with this trial and what the results have been?