newly diagnosed with cc

Discussion Board Forums Introductions! newly diagnosed with cc

Viewing 15 posts - 16 through 30 (of 164 total)
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  • #24644
    vincently22
    Member

    Thanks Darla and everyone in here. Once again, I’m glad to find this forum and although definitely like Lainy said, no one wants to be a member of this club, but I really feel the warm and kind hearts from everyone in here. Anyway, mom was doing better when we left the hospital and i’m glad. Seriously, every single day, we’re really worried and dont know what will happen the next hrs or next day. God, please helps mom and every single patient to get better and soon will be discharged without any discomfort.

    #24643
    darla
    Participant

    Vincent,

    I am so sorry to hear what your Mom is going through, along with you & the rest of your family. You are a very caring & loving son & your Mom is lucky to have you on her side. Try to stay strong & remember that we are all here for you, even when you just need to vent your anger. I will keep your Mom, you and the rest of your family in my thoughts & prayers.

    Lots of love & many cyber hugs for all of you,

    Darla

    #24642
    vincently22
    Member

    Hello,
    I have bad news. The culture of the fluid came back and it was negative. They ruled out everything else and thought that there must be an actual blockage inside her small intestine which required an operation to remove it. They opened up her abdomen and cut off the part where it caused the blockage. As he opened it up, he found that tumor had been spreaded everywhere there. Although he cut off that part, but he doesnt know how long it would be good for and when another blockage will present.
    So today her abdomen got big again. she couldnt pee maybe due to the current medications/condition. They’re just monitoring her condition. Earlier in the afternoon when we told her we were going to eat and would be back, she was conscious at that time. Although couldnt talk, but she held our hands as giving a sign to tell us to stay. We asked her if she wanted us to stay and she was nodding. We asked her if she felt very uncomfortable and she was nodding. We were really scare that god would be taking her away from us. About 15 minutes she was feeling much better I guess. She’s now sleeping and her condition was much better than earlier. However, we’re very scared and we don’t know when the scary moment would come back. Yesterday when we found out it was just a blockage in her intestine, we were happy in a way thinking that would take care of the problem and she would soon be discharged to go home. Then the bad news just came after the surgery. We’re all very depressed. I’m praying everyday n hope that she doesn’t have to go through all the tortures. She’s a great person all her life and she doesn’t deserve to be tortured like this.

    #24641
    barbara
    Member

    They never drained any liquid. I was on antibiotics for over 2 weeks. Distended stomach went down during course
    of antibiotics.

    #24640
    vincently22
    Member

    Thanks for the info Barbara. I would like to know how long was your stomach being distended before it got back to normal? Did they have to drain the fluid out while you were being treated with the antibiotic? I wonder if mom’s distended stomach is ascite but I really hope it’s not.

    #24639
    barbara
    Member

    I had somthing similar with a distended stomach and high white count and they treated it with flagyl and vancomycin. It was a c diff infection in my bowels.

    #24638
    vincently22
    Member

    Hello everyone,
    Mom was transferred to ICU on 3/31 when she had a hard time breathing. They had to intubate her. They had to drain the fluid from her intestine (wasn’t just air) and came out to be around 2.8 Liters of fluid. They brought it to test but the result hasn’t came back yet. They treated her with broad spectrum antibiotic with Flagyl, Zosyn, and Vancomycin. Her wbc was 22 but went down to 12 today. Once they get the result back, they’ll streamline it down to more specific antibiotics. They still dont know what really cause her distended stomach yet. They continue to take CT scans everyday trying to trace down what cause the blockage. They said their last option would be cutting it open and physically see what causes the blockage but they really want to avoid that. As for now, it seems like they’ll have to keep drawing out fluid from her intestine everyday the fluid couldnt be get rid off by her own system. I wonder if anybody experienced this before and how it was treated?

    #24637
    micsyl
    Member

    Dear Vincent

    I feel your pain. It is so difficult but you have been a rock to your mom. SHe is blessed to have a son like you, I draw from your strength.

    with lots of hugs and love

    Michelle

    #24636
    lainy
    Member

    Vincent I am so sorry to hear about your mom’s progression. I am also a care taker and when I needed to let of steam or cry I would get in the car and drive a few block and either let out a few screeches or turned the radio up and sang.
    I sang out loud until I got dizzy. Really helped. Your mom sounds like such a great mom and a lovely lady and she is so very lucky to have you for a son. Hang in and I hope you can find a way to let some of the emotions go. You have been solid rock for your mom from the beginning and it really is a hard thing to watch someone you love so much go through this painful journey. I had ulcers years ago but they can be fixed pretty easily. Please keep posting us.

    #24635
    magic
    Member

    Dear Vincent
    Love and best wishes from the other side of the world
    Janet

    #24634
    marions
    Moderator

    Vincent….although painful, these conversations are so meaninful to both. Your Mom needed to say it and she wanted you to hear it. Us Mom’s are like that in that we always want to protect our children and not the other way around because, we don’t like to see our children worry about us. Your Mom must be so very proud of her wonderful children it is just that she is in a role unfamiliar to her.
    I am sorry to hear about the ulcer. Have the doctors identified the source of the infection?
    And Vincent, crying is good. It really clears our head and let’s the emotions out. My heart is with you and please, continue to reach out to this supportive bunch on this board.
    Hugs coming your way,
    Marion

    #24633
    tiapatty
    Member

    Vincent,

    You are a good son. It was hard for my mother to realize she could no longer take care of herself, can you imagine that after raising 7 children she didn’t want to be a bother to them? Moms are like that, they put everyone else first and feel guilty if they need something, that’s just a mom thing.

    Patty

    #24632
    vincently22
    Member

    Hello everyone again,
    I had been very busy but here is some latest news and they’re not good. Mom was sick more frequent lately with nausea and vomitting plus some pain at the site of her bile duct catheter drainage. My brother & sis took her to USC a few days ago. They did some lab work and it showed that the two spots in the lymph node shrunk a bit/blurrier (which is a good sign I think). However, we don’t think she can tolerate a 4th cycle given her current health. Her tummy got bigger and the newest lab show that there is an infection inside. A few CT scans seemed to confirm that there is an ulcer in her colon (from what my brother told me). They’re currently have a small tube connecting through her nostril to the inside of her stomach to collect the liquid from there and will test it 2morrow or something. I wasn’t here when the doctor explained what was going on and what they were going to do so I don’t know if what I am saying is right or not.
    She looked pretty depressed and we all tried to convince her not to worry at all. But still, being a great mom as she is, she feels really bad for us that we have to take care of her. I told her that she should just relax and not thinking about anything at all. She convinced me that she’s very happy having us as her children and she never had a hard time raising any of us and didn’t really have to take care of her as much as we’re taking care of her now. OMG, i almost broke out crying several times (now too) but I try holding it back so she doesn’t see/know it. Anyway, I guess I’m just gonna stop right now ‘cuz I’m getting emotional. I need to stay away from thinking about it so I dont end up crying in front of her.

    #24631
    vincently22
    Member

    Thanks Marion,
    Honestly, from what happened so far, I don’t see her oncologist cares much except maybe for the money he got. When we told him his assistant that mom was hospitalized, he didnt even come by to check out how mom was doing. He didnt even call us to keep him updated on the status and this is the 3rd time already. Maybe he’s extremely busy but if I was a doctor and knowing my patient go through that, I would care more than just that. Seems like he only cares about mom would get her chemo cycle regardless of what she went through after each chemo cycle.

    #24630
    marions
    Moderator

    Vincent…..you might want to have a big discussion with the physicians involved in your Mom’s treatment as to how to proceed from here.
    I am sending my warmest wishes your way,
    Marion

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