News: Cancers due to 9/11 attack

Discussion Board Forums New Developments News: Cancers due to 9/11 attack

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  • #64332
    marions
    Moderator

    Laurie…..our JeffG had been switched to Methadone. I believe it is possible to add additional drugs for pain control something the hospice nurse must be aware of. May Dan find relieve from the pain asap.
    Hugs to you, Laurie. My heart is with you. Know that we are here for you.
    Marion

    #64331
    peony
    Member

    Hi Marion. It’s been a difficult few days. One of the hospice nurses suggested we switch to methadone. They have seen great success with the drug so we agreed to give it a try since dans pain has been increasing expoentially. However it’s been a tough transition and this is the first time I’ve seen him in such excruciating pain. Hospice has been great in responding and addressing each issue.

    I have good days and bad days but am doing my best to keep it together.

    As far as the reimbursement for meds, we’ve been lucky that insurance is picking up almost everything. The zadroga act inclusion of cancer will allow us to initiate a claim to the 2.7 billion dollars allotted to the vast amount of people affected by 9/11.

    Thanks for asking after us. All my best to you Marion.

    Laurie

    #64330
    marions
    Moderator

    Laurie….thanks much; I think of you often. Have Dan’s reimbursements increased? How is he feeling and how are you holding up?

    Hugs,
    Marion

    #64329
    lalupes
    Spectator

    Thanks, Peony. That’s a really useful link :)

    #64328
    lalupes
    Spectator

    Thanks, Marion. I feel this is so important in the cc fight. XX

    #64327
    marions
    Moderator

    Of course, Lalupes. I don’t see any reason why links retrieved by us (the internet) cannot be duplicated by anyone. In fact, as a designated National Patient Advocates it is my responsibility to share information with the patient community. I have some restrictions placed on me however; most concern the NCI North American Hepatobiliary Task Force activities.
    Hugs,
    Marion

    #64326
    peony
    Member

    http://www.nydailynews.com/new-york/zadroga-act-9-11-cancer-connection-acknowledged-federal-government-report-article-1.1156091

    I attached the link from the paper with a list of all the cancers that are now covered.

    Laurie

    #64325
    lalupes
    Spectator

    I’d like to share this, too. Is that okay??

    #64324
    peony
    Member

    A bittersweet victory.

    #64323
    gavin
    Moderator

    Can I put details of this over on the FB page Marion?

    #64322
    marions
    Moderator

    For those diagnosed with this disease related to 9/11 please make sure to contact the World Trade Health Center. http://www.nyc.gov/html/doh/wtc/html/registry/registry.shtml

    Hugs,
    Marion

    #64321
    lainy
    Spectator

    Marion, we can only hope! This is a Monster that has to be stopped! Like I have said before from our mouths to Gods ears!

    #64320
    marions
    Moderator

    Agree, Lainy. It also means that a higher rate of occurrence of intrahepatic bile duct cancer is related to the aftereffects of 9/11. This includes all people. I am wondering whether this will lead to accelerated research into the cause of the high rate of occurrence.
    Hugs,
    Marion

    #64319
    lainy
    Spectator

    I just saw this on the Internet! Seems so unfair that the NYPD among others have to fight for their life twice! This country is full of Brave Heros and many of them are right here on this Board!

    #7334
    marions
    Moderator

    World Trade Center Health Program Will Care for Ground Zero Cancer Victims

    it includes:

    Malignant neoplasm of the liver and intrahepatic bile duct

    Malignant neoplasms of the retroperitoneum and peritoneum, omentum, and mesentery 6

Viewing 15 posts - 1 through 15 (of 15 total)
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