No more treatment for Charlie
Discussion Board › Forums › Supportive, Palliative & Hospice Care › No more treatment for Charlie
- This topic has 22 replies, 16 voices, and was last updated 13 years, 2 months ago by patrb1961.
December 27, 2009 at 6:03 pm #24984patrb1961Spectator
Sorry to hear this will keep them in my prayersDecember 26, 2009 at 10:32 pm #24983magicSpectator
Dear Patrick,just letting you know that Charlie and Natashas mum passed away earlier this yearDecember 26, 2009 at 8:09 pm #24982patrb1961Spectator
I have read your moving story and will pray for you.I was treated for cholangiocarcinoma in 2008 and originally told I was not going to survive.I am still here after eigthen months after having treatment.Never give up hope.
Patrick BradleyFebruary 14, 2009 at 5:07 am #24981natashaSpectator
Thank you for answering. I don’t think I received the private email, but would like to. The suffering I’m talking about is physical and psychological. After throwing up, having back pain, fever or a painful bile drainage experience, my mom is just exhaustic and her body just can’t take it any more. She becomes so sad and cries and doesn’t want to go on like this. It just destroys me to see her like this. I’m so angry some times. Thank you again for responding. I would love to hear where you both are in your process to date.
BlessingsJanuary 3, 2009 at 3:50 am #24980marionsModerator
Hello NatashaJanuary 3, 2009 at 12:04 am #24979jeffgMember
Natasha…. I would recommend entering “end of life symptoms” in the goggle custom search at top of this page. I know it has been discussed a few times. Otherwise, the basic answer is only God knows for sure when. There has been individuals who have lived for days and others for months once entering hospice. Each person have different end results depending on their cancer and where it has spread to and what is being affected the most. There really is no time table ,even with some symptoms showing. It is extremely difficult waiting day after day. I recommend love and cherish every moment and keep your mom comfortable and pain free.
Jeff G.January 2, 2009 at 8:33 pm #24978natashaSpectator
It’s quite touching to read through these messages. I too offer prayers for strength and resilience. My mom is in the hospital for 3 days now, bile duct cancer within the liver. Diagnosed a year ago and is off chemo now. No eating just I.V. Jaundiced too. She looks like she’s healthy. And thats what is hard to wrap my mind around. I wish someone could tell me how long she has. I spend the nights with her and am happy to do so. Shes suffering but trying to not show it. Today she said she didn’t want to live this way. This is all very sureal. Does anyone have any experience with what the end stages are like. Symptoms? I know this is a heavy question, but I would appreciate all honesty.
One bright morning when my work is over….I’ll fly away home. -Bob MarleyDecember 19, 2008 at 4:37 pm #24972
Thank you Colleen, Jean, Patty and Joyce. Just a quick update on Charlie. He had a good day Thurs. He even wanted to get out and run a short errand by himself. It made him feel so good. He had a little more energy yesterday. He takes naps throughout the day. He wants to try to keep eating solid food, but it’s a real chore for him. He does good with his Ensure’s though.
Sarah and Ben are still working all this through their minds, coming back again and again for reassurance. The hardest one I think is “Could Daddy go really fast?” and you can see the pain and fear in their eyes. It could be fast or not. With liver failure as with this rare cancer, there’s just no set timeline. I won’t be back at my job until, well, really not sure when and that’s fine.
A Hospice social worker and nurse came this morning for an initial assessment. Signed papers, answered a lot of questions. This relieves both of us that when we need them, they’ll be here. Charlie and I both want him to be home for the duration.
This is a little card that has turned yellow with age that I gave Charlie and he stuck in the frame of a picture of me in my wedding dress on his dresser. We’ve been married 26 years.
In Each Other’s Arms
There’s one place where we both can turn when things don’t go our way. Or when we’re tired from all the cares we face from day to day. A place where we know everything will somehow be okay – Within the safety of each other’s arms.
Much love, CarolDecember 19, 2008 at 11:37 am #24977jcleggMember
I love that verse -so comforting. I, too, pray for a painless journey for Charlie. May God bless bless both of you. We are all so fortunate that our “CC” family is always here with us, to share our joys and our sorrows.
Love – JoyceDecember 19, 2008 at 6:30 am #24976tiapattyMember
I hope Charlie can enjoy this special time with all of you, I will pray for a painless journey. Here is a beautiful poem about a journey:
PattyDecember 19, 2008 at 6:20 am #24975jeanMember
I am so very sorry to hear this news about Charlie. There is nothing more to say that hasn’t been said. I will just keep you both, and Sarah and Ben, in my thoughts and prayers.
JeanDecember 19, 2008 at 2:43 am #24974colleenSpectator
Carol – I am so sorry to hear about Charlie. I know its like getting the wind kicked out of you when you realize that there is no further treatment that can be done. Enjoy every last minute you have with Charlie. I will keep you and your family in my thoughts and prayers. Remember to take care of yourself during this time.
ColleenDecember 19, 2008 at 2:21 am #24973
Thank you Darla, hugs and love coming to you too.
Tonia, I know you miss your grandmother so much. I’m glad you had the special time with her too. It is so precious, isn’t it? Take care.
CarolDecember 19, 2008 at 1:34 am #24971toniakMember
Just read your post. I remember how our family felt when we realized there was nothing left to do to help my dear grandmother. I felt like the air had been sucked out of my lungs and everything stopped for a second.
The good news is what you high lighted. Its the time you do have. Lots of talking and reminding each other how much you love one another. We took lots of pictures. At first it seemed odd but now I treasure them so much.
Prayers to your family.
toniaDecember 18, 2008 at 11:31 pm #24970
Jan, we’ve got to get together sometime. Olivet is our church. Charlie grew up in that church. It’s beautiful all decorated for C’mas, isn’t it? Be sure to get there early. You know how it fills up quick. Thanks.
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