No recurrence, but NEW cancer!
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- This topic has 4 replies, 4 voices, and was last updated 10 years, 5 months ago by dianne-n.
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July 28, 2014 at 1:41 am #83714dianne-nSpectator
Thanks for your replies, and for your interesting article, Gavin. You’re right Lainy, I sure didn’t expect this! Kris, interesting that your husband had lymphoma and then CC….so I’m not the only one who has had both types of cancer! I saw the local hematologist/oncologist in my MN town who recommends “watch and wait” as did my hematologist at Mayo. I had a phone consult from an oncologist at MD Anderson (a friend of a friend) who thought I should get treated soon based on the size of my lymph nodes. Think I’ll wait the 3 months and see what my nodes are doing, then make the decision. The treatment would be 6 months of well-tolerated chemo, no radiation. I’ve been told that some patients can go many years with no treatment….which sounds good to me!
Hugs,
DianneJuly 19, 2014 at 5:17 am #83713gavinModeratorHi Dianne,
Being free of CC since 2010 is indeed great news, very great news in fact so congrats on that! And of course I wish you every success in fighting the follicular lymphoma as well and my fingers will be crossed for everything. Please let us know how things go with this. I had a quick look around on google for follicular lymphoma and CC and came up with this. Dont know if it will be of interest to you or not but thought I’d post it anyway.
http://www.ncbi.nlm.nih.gov/pubmed/19716158
Hugs,
Gavin
July 19, 2014 at 4:11 am #83712kvollandSpectatorDianne –
Well I am with Lainy….after beating cc you can handle just about anything now. My husband is the reverse. He had his lymphoma first as a teenager then cc at 49. His was luckily Hodgkin’s but still required big doses of radiation and surgery. I would give the same advice to you as anyone….second opinions are always big. And throw those survival rates out the door, they are looking back not forward and we all need to look forward.Hugs,
KrisVJuly 18, 2014 at 3:39 pm #83711lainySpectatorDear Dianne, well sure didn’t expect this. First though a big YIPPEE about the CC, that is the best. I don’t know that much about Lymphoma but would suggest using our same advise as for CC and that is to not listen to time frames. My goodness, if you beat CC you can beat anything! What kind of treatment will they be doing? Please keep us posted and wishing you the very best. Take each day and give it your best attitude!
July 18, 2014 at 1:31 pm #10322dianne-nSpectatorGreetings to you all! It’s been quite a while since I’ve posted, but have an “interesting” development in my health journey. The GREAT news is that I have been free of CC since I had a surgical resection at Mayo in Rochester in 1/2010…with no chemotherapy or other treatment. However, for the last 3 years the CT and MRI scans have been showing enlarging, and sometimes then decreasing sized, mesenteric and retroperitoneal lymph nodes. I had a biopsy last month (I’d had one in 2011 which revealed only normal lymph tissue) and was given the news that I have follicular lymphoma! This is slow growing and hopefully I will be treated and then live for 12 to 14 years which is the mean survival….I’ll take it! I’m guessing this has to be a fairly rare cancer combo! It’s been good read some of the posts from people who I used to follow, although difficult to read more of the struggles. It’s always uplifting to see the great humor strings that go on in spite of the seriousness of this disease. Stay strong and keep up the good fight!
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