Non US Physicians/Treatment Centers

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Viewing 14 posts - 1 through 14 (of 14 total)
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  • #89633
    marions
    Moderator

    Reviving this thread once more. Please be so kind and share your information on this important thread.

    Thanks a million,

    Hugs
    Marion

    #89632
    marions
    Moderator

    Thought to revive this thread once more.

    Hugs
    Marion

    #89631
    marions
    Moderator

    thought to revive this thread once more.

    Thanks for helping

    Hugs
    Marion

    #89630
    marions
    Moderator

    Please continue to populate this important thread.

    Thanks a bunch,

    Hugs
    Marion

    #89629
    gavin
    Moderator

    Thanks for that Aniket.

    My best to you and your dad,

    Gavin

    #89628
    aniket
    Member

    My father is currently being treated at Tata Memorial Center, Mumbai, India. From what I have got from the doctors, they receive around 200-250 cases of cholangiocarcinoma every year. This may not be a very accurate figure. From our research so far, this is the best center available in India for cholangiocarcinoma.
    I will provide more details and specifics when I have more time.

    Aniket.

    #89627
    marions
    Moderator
    #89626
    marions
    Moderator
    Hope_12 wrote:
    Hello everyone , I’m so glad that I found this site it has helped me a lot reading what you have been through .

    my dad was diagnosed with intrahepatic cholangiocarcinoma in august 2014, he is 53 he had scans after weight loss that made the doctor suspicious, then a liver biopsy of the mass .

    he was not a candidate for surgery because the largest tumour size was in his left lobe of around 16 cms ( 6 inches ), and involvement of all other lobes of the liver with smaller lesions , his performance status was excellent so he was started on gemzar/cisplatin in his local hospital in saudi arabia which is the biggest and leading one in the middle east , king faisal specialist hospital and research centre , he received 6 cycles.

    he had I would say remarkable improvement his weight started to come back to base line his ca 19-9 back to almost normal figures as well as .
    his scans showed regression of that lesion to 6 cm from 16 cm (2.3 inches from 6.2)
    he still had the smaller lesions in other lobes of liver and still wasn’t a resection candidate .

    he wanted to be treated beside his family although I have prepared for him to be seen in experienced big centres like mayoclinic but his wish was that if they didn’t have anything significant to offer then I’d rather stay home, which was the case based on their replies ( mayoclinic, memorial sloan catering)
    I also looked the option of liver transplant which he wasn’t a candidate because his tumour size is large and that it is intrahepatic and also involvement of local lymph nodes and compression on liver vessels .

    after 4 months of chemo he had radiological progression and started on second line xeloda(capecitabine) and oxaliplatin , how ever it progressed regardless and exploded in like 2 months where it has not only come back to previous size but even worse and mets to the lungs .
    he had received 5 cycles of his second line and the oncology team stopped it and decided for no further chemo .
    he was clinically jaundiced and after ERCP and placement of plastic stent better and bilirubin started to come down .

    he has an appointment scheduled in Cleveland clinic , how ever it is a long flight and I couldn’t speak to anyone there to have like a preliminary plan and I don’t want him going there in this condition without any benefit , like getting into a trial or something .

    I also discussed with doctors local therapies to the tumour like TACE and RFA .. how ever they said it would do more harm than good at this stage .

    I feel so sad and also think always like did they give up easy or is this the nature of this cancer .so what do you guys think ? any similar experience .

    thank you guys so much again, this helps a lot

    the medical oncologist : dr Ali aljubran
    surgeon dr Tarik Amin

    #89625
    marions
    Moderator
    mphung wrote:
    My mom had her whipple surgery at the University of Alberta hospital in Edmonton, Alberta Canada

    Her surgeon is Dr. Norman Kneteman

    #89624
    marions
    Moderator
    Genevieve wrote:
    In Australia, my husband has been operated on by two excellent surgeons.

    Canberra:

    Dr Charles Mosse
    Hepatopancreatobiliary, Upper GI and Advanced Laparoscopic Surgeon
    Calvary Clinic Specialist Medical Centre / Suite 20
    40 Mary Potter Circuit
    Bruce ACT 2617
    Tel: (02) 6253 4122

    Sydney:

    Dr Charbel Sandroussi
    Upper Gastrointestinal, Hepatobiliary and Transplant Surgeon
    100 Carillon Ave, Suite 306 RPAH Medical Centre
    Newtown NSW 2042
    Tel: (02) 9565 1375
    Operates at RPA and the Mater Hospitals.

    Genevieve

    #89623
    marions
    Moderator
    Katja wrote:
    Again for UK members, my dad was diagnosed at Bradford Royal Infirmary and swiftly referred to Professor Lodge’s team at St James in Leeds.
    Mr Smith and Mr Menon are both highly recommended for the Whipple; Prof Lodge does the liver transplants.

    We can not speak highly enough of Mr Menon – he did a wonderful job on my dad, hardly any complications to speak of and visited him every day for at least a week. He keeps him under surgical observation every 3 months even though my dad is also under oncology as ‘he’s one of our success stories’.

    Mr D Swinton is my dad’s oncologist, and again is highly recommended. He really knows his stuff – with a very calm manner.

    #89622
    marions
    Moderator
    Gavin wrote:
    Great idea for a thread Marion.

    My dad was diagnosed and treated with photodynamic therapy by:

    Mr Iain Tait
    Ninewells Hospital
    Dundee
    Scotland

    http://www.dundee.ac.uk/surgery/onestaff2.php?ID=60

    http://www.nhstayside.scot.nhs.uk/patients/hospital/ninewells.shtml

    Hope that helps.

    Gavin

    #89621
    marions
    Moderator
    mlodge wrote:
    I am at the Princess Margaret Hospital in Toronto.

    Surgical Oncologist is Dr Alice Wei 416-340-4232, Medical Oncologists are Dr Jennifer Knox 416-946-2399 and Dr Anne Horgan, and Radiation Oncologist is Dr Rebecca Wong.

    Thanks,
    Mel

    #11680
    marions
    Moderator

    Please share with us the names of physicians/treatment centers involved in your or your loved ones care. With your help patients and caregivers are able to identify physician and/or treatment centers outside the US.

    Thank you.

    Hugs,
    Marion

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