Hi Elaine, this is Elaine (Lainy). I just read up on the SBRT and it sure sounds like Cyber Knife. I have never heard it called that though. Gold fiduciaries were implanted (size of tiny needles no discomfort) treatment was 3 days and side effects were tiredness and later some itching in the area, actually in the back. Tumor can be no larger than 6 -7 cn. It is truly a MIRACLE. This started out as treatment for brain cancer and now they are using it all over. We had no trouble getting it authorized AFTER he had radiation. Stupid protocol you know. Good luck and please keep us posted.
We were right to be skeptical about insurance approval. There was a mixup in communication, and we’re still in the appeals process. In the meantime our surgeon at Duke and a radiologist have reviewed Gary’s scan and are recommending SBRT. Coincidentally that is the procedure Dr. Kennedy said looked like a good match for Gary when we had a consult with him for possible SIRT. So we have an appt. at Duke on Tuesday and also found out the SBRT is 100% covered by our insurance. It looks like our move to FL is off for awhile – whatever it takes!
Gary’s endo/colon scopes yesterday were clear except to prove that bile is leaking into his stomach and is probably the cause of his nauseated feeling. The dr. gave him Questran to help bind the bile and flush it away. Does anyone have experience with that?
I’ve done a search on this site for Stereotactic Body Radiation Therapy(SBRT) but would appreciate anything new anyone can add.
Lainy, praying for your surgery at the end of the month – know you’ll come through with flying colors! Is Cyberknife the same as SBRT except without the robotic arm? I know Ted had Cyberknife. Things get so confusing after hours on the computer doing research.
Best wishes and prayers to everyone, Elaine and Gary