Not sure where to go now
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Dear Sanjay,
I am very sorry to hear of the passing of your dad. Please accept my sincerest condolences. My thoughts are with you and your familt right now.
Gavin
Dearest Sanjay….I am so sorry to hear of the passing of your dear Dad. My heart goes out to you and you family.
Sanjay, your help is needed.
Presently, while attending the American Society of Clinical Oncology Conference our booth is visited by many physicians including, physicians from India. One of my major problems with the end of life care for CC patients is the amount of pain they need to experience. Due to the nature of the disease oral pain medication may become ineffective during the later stages and patients suffer. From what I have learned is that there are hospice organizations in your country however, they do not visit outlying areas. All of us including our Indian friends please, help us to initiate end of life pain control rol for Cholangiocarcinoma patients. Whenever you are ready please, let me know.
All my love,
MarionDear Sanjay, I am so very sorry to hear of your Father’s passing but he has gone to a more Peaceful place.
When someone you love becomes a Memory, the Memory becomes a treasure.
Thank you all for your care and support. My dad passed away on 17th May after battling hard through the last stages on this cancer. Ascites (water formation in stomach) and acute pain throughout the day was really testing his nerves as well as ours. After the pain of last few weeks, we feel it was better for him to leave this world and live in peace in another world.
I would continue to visit this site to provide any help I can to other patients suffering from this highly dreaded form of cancer.
Take care
SanjayDear Sanjay –
Sorry about your dad. You have joined a family here on the CC website and we care how you and your dad are doing. Please keep us updated about your journey. We care about all the ups and downs of this process and will do our best to provide support.
Blessings,
SusanHi Sanjay,
Welcome to the site. I am sorry to hear about your dad and I hope that the link that Marion has given you will be of use to you. I am glad that you have joined us all here as you will get a load of support and help from all of us. I came here back in 2008 when my dad was diagnosed with inoperable CC and at the time, it was the best thing that I could have done. I got so much support and help from everyone and I know that you will receive the same.
Please keep us updated on how your dad is doing, and if you have any other questions then just ask away and we will all do what we can to help you. You are right that it is a daily battle, but we know what you are going through and we care.
My best wishes to you and your dad,
Gavin
Hello Sanjay…..and welcome to our site. T-Cell Immunity Therapy is researched in numerous centers. One particular link on our site refers to it: http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=333.
Please, stay in touch and share with us your findings.
All my best wishes,
MarionMy father aged 62 was diagnosed with Cholangiocarcinoma about 3 months back. As the cancer had metastasized, the doctor doctor couldn’t perform surgery (hepatectomy) to remove the tumor. He sugegsted Chemo, now he has been on Gemcite chemotherapy for 2 months (4 sessions) and after that came a rude shock. The CT scan showed that the tumor had in fact grown in size from about 6×5.3 cm to about 10×8 cm. This is when the chemo drug was changed to a tablet called Xeloda. This was very strong on my father’s body and he almost stopped eating, became very week and almost stopped getting up from the bed. So, we had to stop the chemo altogether.
Although there doesn’t seem to be any other hope, we heard of a doctor in Mumbai trying T-cell immunotherapy. Has anyone heard of this and how does it treat this cancer? http://drrajput.co.in/2011/04/anti-cancer-therapy/ The treatment is expensive and I doubt it covered by our Insurance. So, we are not sure what to do next. Of course in India Ayurveda is always a hope for anything, so we will definitely try that.
Let me know if anyone has heard of this T-Cell immunotherapy.
Life with cancer is a daily battle but seeing other people’s comments about fighting it out definitely improves your strength as well. Let’s keep this social network alive.
Sanjay (Bangalore)
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