Odds of resection after Chemo/Radiation
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Peter-I am a CC survivor. I was not a candidate for resection because mine was inoperable, but I was a candidate for transplant. My miracle worker was Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. Dr. Chapman is one of the leading doctors for treating CC. Please read my story at thetelegraph.com under christmas miracle, there is HOPE.
I would ask about transplant. The Mayo Clinic and Barnes are both big advocates of this trial as a cure.
Lots of prayers-CathyWhile I cannot comment on whether or not your father is a resection candidate, the surgeon who did one on me several years ago, Tomoaki Kato, has a reputation of being a very creative surgeon, and has successfully operated on a number of patients considered ‘inoperable’ by one or more others. My situation was not so much inoperable, as it was high risk due to a number of factors (serious cardiac issues, etc.). I had several cardiac events during surgery, but no harm done. I’m now into my third year clean. My friend Kim had a much more elegant (translation: difficult) surgery almost a year ago. She was declined surgery by three major Phila. hospitals as well as Robert Wood Johnson in NJ. I consider Dr. Kato a miracle worker.
I’m sure there are circumstances that do make a resection impossible, but there are a lot of situations that just make it very difficult, not impossible. I wish you well in your quewst for treatment.
Hello Peter,
I hope your dad gets his resection. I saw Dr. Pawlik (?spelling) at Hopkins. My tumor is much bigger then your dad’s and also wraps around the artery and vein. Dr. Pawlik told me he could not do a resection, instead I was offered chemo-embolization at Hopkins. I have had one chem-embolization and after the first MRI, the radiologists notice that my tumor had some death. I am due for the second MRI July 5th to see if there is more death. I am hoping it moved away from the vein and artery.
I am going to the MAYO clinic in Rochester the last week of June to see what other treatments there are for CC. Medicine is not an exact science so I am willing to go to anyone who will help me kick this disease. To my knowledge, my CC has not spread.
Wishing you all the best at Hopkins. Sincerely, Johanna
Peter…..a warm welcome from me also. Good luck with the upcoming consultation with Dr. Choti. He is very familiar with this disease and will be able to confirm (or not) the previous diagnoses and treatment options.
As Lainy has mentioned being that it is a rare disease (orphan cancer) much is still to be discovered and, approaches and treatment choices may vary from specialist to specialist. Although, some respond well to a particular treatment others may not experience the same. Therefore, knowledge is power and it will allow you to make educated choices. Please, stay in touch; we are in this together.
All my best wishes,
MarionPeter, that is a good choice. Any MAJOR Cancer Center is good. Especially Mayo, Rochester and MD Anderson Houston and Barnes in St. Louis. I have also heard great things about Dr. Choti. Weekends can be slow on this site but I know you will be getting some good answers! Hang in.
Lainy thanks for the reponse and hope. He is in Denver being treated at Porter and is 68yrs old. However, I have been talking to several surgeons and hope to take the latest data to Dr Choti at Hopkins. He seems to be the subject matter expert and I hear many good things about him.
Dear Peter, welcome to our wonderful family. Yes, we have had resections after chemo and radiation but a lot depends on the size of the CC and the location.
And OH YES to different doctor opinions. We are very pro 2nd and 3rd and maybe 4th opinions. If you go through some of your posts you will see. Jim Wilde comes to mind and he will probably jump in here when he sees your post.
The waiting for test results, answers etc. is a major anxiety event! The only advise to give you is to stay strong, stay very strong. Where is your dad being treated and how old is he? Another yes to the many unknowns. Because CC is so rare the only thing we know for sure is we no not much. Attitude is so very important for the patient and the family. I have thrown out some tidbits here but I know you will be getting some more answers. One more thing. Once a treatment plan is set, you do feel less anxious and the fright turns then to fight!Hello, well like many the instant hopes of curing this disease right of the bat via surgical resection were quickly shattered mid surgery. My dad was officially diagnosed with CC in March after an attempted resection we all thought would be a slam dunk. To make matters more frustrating from what we understand he barely misses resection in the sense that his tumor while not very big 2.5cm extended itself in two critical areas of the right and left lobes of the liver and encases the portal vein and hepatic artery.
My question is if anyone knows of any cases where an unresectable scenario became resectable after a chemo and radiation combo. The reality is we are going to find out Wed the new state of the union but the anxiety is building up in me and family members once more.
Also has anyone had one doctor claim they were unresectable only to find another doctor disagree? This is getting very hard because ultimately my dad is becoming the victim of many unknowns with the back and forth. Thanks so much!
Peter
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