May 29, 2014 at 3:05 am #76442dukenukemMember
Are your preps for the ride around Tahoe progressing on schedule?
Plan the work then work the plan.
DukeMay 1, 2014 at 12:17 am #76441
Lisa…so glad that things went well today for you. Try to watch some food commercials to hopefully increase your appetite. Rest up and yummy food; sounds like a pleasant way to forget the morning happenings.
MarionMay 1, 2014 at 12:12 am #76440
A, HA! Wow, would they let you have a few Martini’s?April 30, 2014 at 11:58 pm #76439
A few exchanges ago, I had a moment when I stopped breathing with the anesthesia. That freaked them out. It freaked me out too, although I didn’t know about it till later. So, now, they don’t want to put me so far under.April 30, 2014 at 11:18 pm #76438
LisaS I am glad it over but one thing I don’t understand. Teddy had his tubes exchanged like every 2 – 3 months and they ALWAYS gave him a light sedation and he never felt a thing. Doesn’t everyone do that? I am glad its over for now! Now go and get your fat on!April 30, 2014 at 11:13 pm #76437
Tube exchange today went well. The “team” knows me and I know them too. By name. I even recognized nancy, the charge nurse, by her haircut when she was standing with her back to the desk when I checked in.
I was handled very gently. I told them I felt every tug and pull last time, so this guy took his time and did it slowly. Yay. Had to stay 2 hours on bed rest before being sent home. Got home about 1:30. My husband had to go to the office, so my 84 year old mom and 89 year old dad came over to babysit me. I napped all afternoon and I am going to eat a bit of dinner and fall asleep in front of the Mavs/Spurs playoff game. I feel very sore. Just took two Tylenol, so hope that helps. If not, I’ve got something stronger I can take later.
I weighed in the morning at 111.3, fully dressed. I wish they had weighed me when they did the labs instead of bringing a scale to my room and doing it in front of my husband. Boy, did I get fussed at.
It does seem my taste buds are a little bit more normal today. Hope that means food will start tasting normal, because I really don’t have any more to lose.
LisaApril 30, 2014 at 2:12 am #76436kvollandParticipant
So sorry you had to go through it again. But you will probably feel better once it’s done and the temp is down. Sending positive thoughts your way.
KrisVApril 30, 2014 at 12:53 am #76435
Oh, Lisa…..think of us when going through this procedure; you have a tidal wave of love heading your way.
MarionApril 29, 2014 at 9:20 pm #76434iowagirlMember
Just had my port installed last Friday and even with a bolus of the conscious sedation “juice” in the IV was was wide awake for the entire procedure….not my idea of a good time at all for that hour. I don’t think he thought I was truly awake and would remember, because he said some things I don’t think he’d have wanted me to hear in context to the procedure. I’ve had conscious sedation work just fine before, so I have no idea why it didn’t work this time, but it also didn’t work when I had the liver biopsy either.
Hope like anything that the procedure goes quickly and that they can give you something, anything to lessen the sensations. Will be thinking of you and looking to see your post after you get it done and feel up to it.
Hugs from Iowa Girl,
Julie T.April 29, 2014 at 4:31 pm #76433
My husband had cataract surgery yesterday. He was such a happy camper afterwards. I don’t know what they gave him, but I’d like some if that!April 29, 2014 at 4:30 pm #76432
Mine have lasted anywhere from 3 days to eight weeks. My oncologist was hoping with the antibiotics and blood numbers looking good, I could stretch the average 4-5 weeks between exchanges a bit longer and get through my scans.
I just hate the fact I’ll be awake during the procedure. I had a reaction to the anesthesia once and now I get about as much sedation as being at the dentist. Wait, I actually recall sedation at the dentist as even better (deeper) than this!April 29, 2014 at 4:29 pm #76431
Hi LisaS, wow some people will do anything for attention! JK
Sorry to hear you sprung a leak but best to get everything taken care of and perhaps it won’t be long until the tubes can come out. Keep up with your wonderful attitude and humor! Good luck tomorrow.April 29, 2014 at 4:25 pm #76430willowParticipant
Sorry about the chronic infection from tube blockages! Best as you get them replaced. I’ve hear others on this board who had repeated problems had them regularly replaced rather than wait for infection. Can’t recall interval. Take care, Lisa!
WillowApril 29, 2014 at 3:43 pm #76429
So much for the few weeks off from being poked and prodded. Finished a 7-day Rx of levoquen prescribed after I spiked a high fever the day before we left on our anniversary trip (also on augmentin on a more long term basis to prevent infection in these bile drain tubes that I have a love/hate relationship with). The day after finishing the levoquen, temp spikes to nearly 102 and nausea. Back on stronger dose of levoquen. Despite that Sunday night, fever spikes again over 101.7. And more random nausea.
My oncologist was so hoping to get through till my scans without having to exchange the tubes (8th or 9th set since October). He thinks they may be able to come out. I was just hoping to go a few weeks without needles.
But, with these fevers every few days, I’m checking in tomorrow at 7 to get new tubes. Good timing. My left one (it’s always the left one) just sprung a leak. So, definitely what’s causing the fevers. Crud.
I feel okay other than when running 101+.April 25, 2014 at 1:35 am #76428
Kris….although rarely used for our cancer, we used TPN for my husband. I realize it is not the best of options however; it allowed him to stay viable. Just a thought.
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