Oncologist recommends Hospice
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- This topic has 12 replies, 7 voices, and was last updated 12 years, 10 months ago by marions.
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February 10, 2012 at 9:09 pm #57568marionsModerator
Roni…good to hear that the situation has been handled with such sensitivity and respect for your Mom.
Drive safely and know that a tidal wave of good wishes is heading your way.
Hugs and love,
MarionFebruary 10, 2012 at 7:38 pm #57567lainySpectatorRoni, sounds like you have things well under control. I hope the pain management is working. That is why I had called you as I was so concerend about that first and foremost. I hope everything goes well this weekend, hang in and be strong!
February 10, 2012 at 7:34 pm #57566ronidinkesMemberThank you everyone for your support and love.
Mom is on dilaudid 4mg a couple of times a day, and medication for nausea, liquid morphine as need for break-through and g-d knows what else.
We call this “new” situation “pain management” not “hospice.”
Mom slept well last night and is meeting with the pain management/nurse today at home.
I hope to visit/drive up tomorrow.
Will keep you posted.
Your unconditional love and support has not only helped me through this difficult and painfull process but, continues to be the backbone of my strength at this time.
Off to see patients.
Everyone have a wonderful and safe weekend
We are at $8930.57. I am doing my best to get people to donate.
Hugs,
RoniFebruary 10, 2012 at 3:37 am #57565pamelaSpectatorBless you and your Mom, Roni. I will pray for you to be given the strength you need to get through this. I am sorry it is so hard. Please take care.
Love, -Pam
February 9, 2012 at 11:53 pm #57557lalupesSpectatorDearest Roni, I’m so sorry for all you’re going through. My sister’s pain gets out of control, too & all I can do is rub her back, whilst my heart also breaks. Hospice is wonderful for symptom control; I do hope your mother is able to accept the help they can give.
I’m thinking of you. XX
February 9, 2012 at 10:14 pm #57564marionsModeratorGerry….where have you been?
February 9, 2012 at 8:47 pm #57563hollandgMemberRoni
I feel for you at this diffiicult time when hard decisions need to be made. Hospice care is best at managing pain and not just improving quality of life but prolonging it and given the advice of the Oncologist, your Mum may be persuaded to look any at this option again.Gerry
February 9, 2012 at 5:53 pm #57562marionsModeratorRoni…as pain increases your Mom’s comprehension will decrease. I am concerned considering that you had found her doubled over in pain not too long ago. Realizing how much your Mom wants to stay in control, I wonder how this delicate situation will be handled. Your Mom is such a character. She certainly has touched my heart.
Hugs and love,
MarionFebruary 9, 2012 at 12:50 pm #57561ronidinkesMemberWe have full-time 24/7 medical assistance.
Not a nurse, mom creates her own potions…and combinations….
The pain is growing rapidly and I think Hospice will help control that.
I really though I had no more tears, but much to my surprise, I still have many.
I am so thankful to be apart of this family.
Thank you for always being there to listen, for your unconditional support and love.
I will keep in touch, promise!
Regards,
Roni
443-394-6163
ronidinkes@yahoo.comFebruary 9, 2012 at 3:12 am #57560marionsModeratorRoni…I know you well enough to say that you have proven your strengths throughout the previous months and you will continue to be that person for the time to come.
Roni, pain control will be the most pressing issue for your Mom and I am wondering as to who is watching over that? Did you hire a nurse?
Hugs and love,
MarionFebruary 9, 2012 at 1:45 am #57559lisacraineSpectatorRoni, it doesn’t matter how old you are..your Mom is your Mom and the thought of loss is so painful. I lost my Mom about a year and a half ago and her beautiful memories keep me going. I will pray that God comforts you and gives you peace.
LisaFebruary 9, 2012 at 1:40 am #57558lainySpectatorHi Roni, I am so very sorry to hear about your Mother. Do you have Hospice coming in or a private company? Either way they need to get Mom’s pain under control. Sounds like your Mom is going to make this journey her way and perhaps that is why she is not eating. You are only 41 and that is very young to loose a Mother but I have faith that you are going to be strong and we are all here foryou to walk you through what ever you need. You never know how strong you are until “strong” is the only choice you have!
P.S. From your mouth to God’s ears on the 20K
February 9, 2012 at 1:21 am #6341ronidinkesMemberI thought we were ready for hospice November 2011, Mom fired them days later.
Now the Oncologist has recommended Hospice. Mom’s pain is horrible, I went to visit last weekend and found her slumped over the bathroom in terrible pain, had to help her get dressed and gently put her bed. Her memory is fading, and I see in her eyes her attempts to maintain control, but then her eyelids get heavy.
Now that the Oncologist suggested hospice she is hysterical, refusing to eat, and drink.
She is on her pain medication and resting. She is not taking phone calls. We have hired 24/7 care.
I just cannot imagine that the woman who gave birth to me, not being here anymore.
My heart aches, and my mind races.
I have thrown myself into work, to keep my mind busy. I am scared, I admit it. Everyone says you go through it, and you make it through, but I am not so sure after the last 18 months I have any strength left.
I am a scared 41 year old woman, I should act like an adult, but I feel like a child, scared of loosing my mother.
Will keep you all posted! I am trying to raise as much money as I can through friends and facebook. I hope we reach 20K this month!!! Fingers crossed!
Regards,
Roni
ronidinkes@yahoo.com -
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