Our Melinda at the White House – watch life – NOW

Beatriz….all valid points and all are in discussions with FDA and other Government Agencies.

1. Community Oncology….there is a big push for greater inclusion of this group. There are barriers though

a. The majority of community oncologists are not up to date with clinical trials
b. often times they are resistant to recommending a clinical trial. Reason: patient may suffer, quality of life diminishes, financial burden too great,
An exception and perhaps the beginning of a new era is the NCI MATCH trial in where nearly all patients are tended to in community settings. The ASCO TAPUR study is similar.

The financial burden of cancer care is well recognized as is the burden placed on family members. Where is the solution? Know that us advocates are working hard with pushing for changes.

A portion of my presentation at the upcoming cholangiocarcinoma foundation conference will include a section on “Financial Toxicity”
You may also want to take a look at this:
https://www.cancer.gov/about-cancer/managing-care/financial-toxicity-hp-pdq

Beatriz, I am wondering: would you grant me permission to include your posting in my presentation?

Hugs
Marion

Soon it will become a regular video. In the meantime though, please drag the red circle back to the beginning to see the entire session or, push red circle to the right until you see Melinda, left side of panel.

Marion