Tagged: 77 year old mom - follow up
April 16, 2018 at 12:41 pm #96846
So happy you found our community, but I am sorry to hear that your father was diagnosed with cholangiocarcinoma. I hope you and your family find the resources on the Cholangiocarcinoma Foundation website for newly diagnosed patients helpful.
As you may already be aware, job one with this diagnosis is lining up medical providers who are experienced with this rare cancer. This usually means working with doctors at a major cancer facility.
Treatment options have multiplied for this cancer, so the outlook is more hopeful than in the past. I know your care and support will be invaluable for your father, especially with your medical background. As many of us here have learned, the medical maze can be challenging with a rare illness.
Please let us know how your father is doing, and if you have concerns or questions, the community on this board is here to help.
Take care, regards, MaryApril 16, 2018 at 12:22 pm #96845SarwithketchupParticipant
Hi everyone. My name is Arlyn. I just found out my 63 year old father was diagnosed with Cholangiocarcinoma this past Thursday. I feel like my world has been turned upside down. I don’t know the details of it yet–just know he had a biopsy to confirm it last week. I am a nurse practitioner that works in primary care in Southern California and am planning to move back home to Northern California. Reading the posts and seeing all the support on this site is giving me hope and helping me to stay strong. I am hoping to relay some of that hope and strength to him.January 14, 2018 at 12:17 pm #96460
Welcome to the new format of the discussion board. Since it is new, we are still getting used to it – if you have suggestions or questions, there is now a place on the right-hand side that tells you how to contact the administrator (Rick). Any suggestions are most appreciated.
To add a posting to an existing chain, look for a button at the top right-hand side that says “reply.” Or scroll down to the very bottom of the thread and you will see the box for the reply. Your new entry will then appear at the top of the chain and will also be flagged on the beta page that lists the newest topics and postings.
I looked at your earlier messages and some other users did use that same thread to discuss and update their own stories. The moderators very occasionally move a posting if it fits better under a different heading – e.g., a posting about chemo appears under the radiation topic. I will look into whether we can separate out your reports on your current treatment into their own topic so that info is easier for others to find and follow.
Looking forward to hearing your update! Regards, MaryJanuary 13, 2018 at 9:26 pm #96456katrinaParticipant
I am now signed into the New Discussion Board. I wanted to give a positive update to my entry in What’s Working Now, but I didn’t see a Posting ability. Please confirm what to do. I do hope that the entries now come with the most recent posts first and that posts are appropriate to the topic of the Discussion Board subject (or moved). Hope to see you all at the conference!September 29, 2017 at 2:16 pm #95724CaitParticipant
Huzzah! Super exciting. 🙂
Congrats to Rick and team for an awesome end result, and thank you for your efforts in getting this new site up and running. Everything looks great!September 28, 2017 at 11:31 pm #95711gavinModerator
Thanks Rick! New board looks great and it must have taken a TON of work to get here! Looking forward to the new features as well!
Thanks to all,
GavinSeptember 27, 2017 at 8:38 pm #95666
Congratulations! The new version looks great. Thanks for helping with logins.
Regards, MarySeptember 27, 2017 at 4:14 pm #95662rickKeymaster
As you may have noticed, our new Discussion Board is here!
There are a couple things to keep in mind. If you are an existing user, if you’ve posted on our old board, you still have an account! You just need to reset your password. There are instructions in the support menu above.
If you have issues/problems/questions, please fill out the form above. It gets emailed to me and I can answer you right away.
Thanks everyone, this has been a huge process and we’re not done, we’ll be rolling out new features in the near future!
P.S. Since everyone needs to reset their encrypted password to join the new board, I wanted to make sure you’re aware that YOU DO NOT HAVE TO USE THAT MONSTER PASSWORD that is generated when you click on “Generate Password”
Simply click in the box, delete it and replace it with something you can remember. I hope that helps!
- This topic was modified 2 years, 2 months ago by rick.
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