Overall survival peri-hilar cholangiocarcinoma: R1 resection with cura
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Hi Jill and early Congratulations on hitting 3 years. What you say is true and the very reason why we tell people not to listen to statistics! You are a great example. Unfortunately because of it’s rarity it is all we have to measure anything by for CC. When Teddy had his Whipple 6 years ago the Doctors, 5 of them, all concurred that Chemo/Radiation would not help him and they were right about his case. He made it to 5 1/2 years! When we went for a visit to Milwaukee a year ago to say “goodbye” to friends and family, it was very important to Teddy to say thank you to his surgeon. Dr. Henry replied with, “Sal (he always called him Sal) I never thought you would make it past a year.” I guess the best way to live with CC is to just take it a day at a time!
Jill, stay strong and you are awesome!Looking at this data, seems like its saying without surgery , average survival was only 5 months. With chemo and radiation.
With surgery, then following with chemo and radiation, lengthens survival to 18 months.
I have issues identifying with this study. Having no chemo nor radiation, I am now about to hit the 3 year mark. I would have loved for them to add to this study , those who did not take the chemo nor radiation.
It really does seem that we are a rare breed. Perhaps it is the area where I live, rural, where not one Dr. felt it was a real need, was only told there was no evidence that it would prevent the recurrance.
If one reads these forums enough, you would perhaps notice that most who do the chemo, after the surgery, are the very ones with the highest reccurance. I just do not know what to think .
Overall survival peri-hilar cholangiocarcinoma: R1 resection with curative intent compared to primary endoscopic therapy.
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