Discussion Board Forums Adverse Reactions & Side Effects pain following internal/external biliary drains

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  • #93004
    karend
    Participant

    Beatriz,

    What a kind thing for you to say, thank you! :-)

    -Karen

    #92996
    positivity
    Participant

    Megan,
    The first issue to rule out would be pancreatitis as this is a risk factor with ERCP when placing stents, even though she doesn’t have stents it’s probably similar. My mom got pancreatitis and her lipase level shot up high and got abdominal pain even with IV of pain medication. Luckily, it subsided in about a week, but the patient must be monitored daily with bloodwork. Why did they choose drain over stents? Is it due to tumor location?
    Hopefully she feels better soon.

    #93003
    marions
    Moderator

    We are in this together, dear megan, hang in there.

    Hugs
    Marion

    #93002
    megan8
    Member

    Thank you to everyone for your help and advice. I can’t thank you enough. This is such a difficult time, and there are not many places to turn for help. I can’t tell you how much I appreciate you all and this group in general.

    #93001
    marions
    Moderator

    There you go, Megan. Karen laid it out in clear terms. Stand your ground, there are too many unanswered questions. Lainy also made a good point in that tugging can increase pain around the wound.

    Good luck,
    Hugs
    Marion

    #92997
    lainy
    Member

    Dear Megan, My husband had internal and external drains and could the problem be the drain is pulling on her skin? I know it sounds like a small thing but we used to pin the drain to the bottom of Teddy’s undershirts so they did not hang so low and pull on him. You may also ask for Home Nurse to come take a look at the set up to make sure there is nothing causing the pain. Wishing you the very best.

    #92999
    karend
    Participant

    • This reply was modified 1 year, 10 months ago by karend.
    #92998
    megan8
    Member

    Hi Marion,

    Thank you so much for your reply.
    She had CT scans done on the first day of her hospital stay – so a week prior to the drains being placed. At that time, it did not appear that there were changes; however, she has not had a recent PET scan. I will ask her oncologist about that.

    Thank you for the information on the drains – there are so many new terms and concepts to wrap my head around lately. I am trying to keep up with everything!

    I would love any input from Karen – thank you so very much for your help!

    Sincerely,
    Megan

    #93000
    marions
    Moderator

    megan….I am sorry to hear that your Mom is encountering the enormous pain not responding to oxycodone and morphine. I will forward this to our oncology nurse, Karen, with the hope she can respond quickly.
    Please know unlike internal biliary stents external drains do not need to be exchanged.

    As it is confirmed that the drain procedure is not the cause of her pain, has your Mom been scanned to see whether the root of the problem is related to the tumor?

    Hugs

    Marion

    #12689
    megan8
    Member

    Hello,

    My mother was diagnosed with Stage 4 intrahepatic CC in October, 2016. She has had 6 rounds of chemo since then (gem/cis). She was being treated at Stanford in the bay area in CA; however, she was planning on moving down to San Diego to be closer to me and my sisters. She and my dad came down to meet with the oncologist at UCSD for the first time and to see their new house and she became very nauseous and had a lot of pain. She has now been in the hospital at UCSD for 12 days and has had a very difficult time. Her bili increased quite a bit and they ended up doing an internal/external biliary drain. They have not yet done a capping trial, so she does have two drainage bags currently. Since the procedure, she has been in a tremendous amount of pain. IR has followed up and done an ultrasound to ensure that no complications occurred during the procedure and everything appears to be fine internally. Her liver functions are looking better as well. However, her pain is very intense. She is on oxycodone and morphine to try to manage the pain, but it is not very helpful.
    Has anyone had any experience with this before? Is it common to have this much pain following that procedure?
    Also, from reading some of the posts on here, it sounds drains become clogged and leaky quite frequently and need to be replaced. Does that mean that she needs to have this procedure again, or is it more minimal when they just replace them?
    Any suggestions or input is greatly appreciated!

    Sincerely,
    Megan

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