Paranoia
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Jose,
I had to go back and look at my previous posts. This is what Mom was on the last couple of days….
She was getting morphine, a scolpomine patch, atropine and lorazapam. I’m praying for both of you ….
This is so hard…..
Pam
SENSITIVE
Thanks to everybody. I feel strange, uneasy, guilty, devastated, etc. And she cries. She cries. She knows and she is scared. It’s horrible.
SENSITIVE:
Jose,
I just wanted mention something about the breathing. About a week before Dad passed, he started having really deep sleeps similar to what you are talking about, and his breath slowed down incredibly. I remember sitting with him for an entire night counting his breaths, convinced each would be his last. He only took a breath once every 45 seconds or so (I can’t remember exactly, but I do know it’s in one of my posts here somewhere). He wasn’t on much pain medication at that point – it seems the pain had gone away. You may be right about the doctors giving so much sedative that she slept deeply, but I also believe the slowing of the breath could be a natural next step with your sister. It’s hard to say. One thing I know for sure is that these days are so tough, and I am thinking of you and your family constantly during the difficult time.
Hugs,
JenSensitive
I don’t know if they have checked ammonia levels. I have to ask. I will pass this information. She had a severe anguish attack yesterday. Doctor said that there is not a proper treatment to prevent anguish for death. How can a person accepts his own death?. This severe attack of agitation and aguish makes doctors to provide a higher dosage of sedative to her so she finally fell slept deeply sleeping. We fear that this was a sort of involuntary euthanasia (her will is to live at all cost) and we asked doctors to reduce this dosage. Fortunately she woke up, went to toilet, etc. but I am afraid she went through a stage of semi unconsciousness and her breath, during sleeping was really really worrying, like stopping sleeping and then a sudden breath out. OMG. This is horrible. It looks like she is approaching to the end and I am abroad now. I am arriving on Sunday night.
Jose,
Did they ever test her ammonia levels? If it is high, lactulose can help bring it down. Hepatic encephalopathy is a terrible thing to watch. I wish you the best.
Susie
Cherbourg wrote:Jose,Diazapam was the drug my mother couldn’t handle. Please ask if by chance there is something else.
Mom was seeing things, insisting my sister had been in a horrible car accident and was totally unable to sleep or be calm. I finally had to throw a fit, demand a pharmacist, the heart doctor, and the cancer specialists sit down and talk to our family and each other. I pointed out the problems started with the drug. I’m in the medical field so I had no problem throwing my fit. They changed her meds and it was amazing to see her return back to herself.
It’s worth a shot.
Pam
Pam, could you please tell me which drug did she take instead of Diapezam?
Thank you to everybody that is supporting me and to all these kind words
Hugs
JoseI am so sorry for what your sister and your family are going through right now, and I prayfor peace for you all in the days to come. You have people all over the world thinking and praying for you, and I hope you can feel all the love surround you from across the miles.
Hugs,
JenniferJose,
Diazapam was the drug my mother couldn’t handle. Please ask if by chance there is something else.
Mom was seeing things, insisting my sister had been in a horrible car accident and was totally unable to sleep or be calm. I finally had to throw a fit, demand a pharmacist, the heart doctor, and the cancer specialists sit down and talk to our family and each other. I pointed out the problems started with the drug. I’m in the medical field so I had no problem throwing my fit. They changed her meds and it was amazing to see her return back to herself.
It’s worth a shot.
Pam
Julia and Jose, I could not have said it better. No human should have to endure this and right now I am feeling that I hope Carmen’s Doctors NEVER have to go through something like this personally!
Dearest Jose
My sister’s Hospice doctor told me they realise they know far too little about this disease and said that Susan “doesn’t fit any cancer-pattern we’ve ever seen before”. It’s so incredibly hard to assess timescales. They suggested we work on the basis that she didn’t have very long but that they genuinely didn’t know. We got the 12-hour call 4 times in the past month and were told she only had days 6 months ago.
By the time she was as distressed as Carmen clearly is, and I was internally begging for her to be out of pain and distress, it was not very long at all until she was.
You are going through the Carer’s nightmare, as I and many others have done. We are all holding you in our hearts.
XX
Sensitive
Thank you to everyone who is supporting me. Doctors mentioned this amonia levels but I ignore what is the procedure to check it out and how to treat it. They insist to provide IV diazepam and alprazolam and the result is that she can barely talk and she cannot sleep during nights keeping her agitation and akathisia. That is: doctors insist with a line of treatment that is not working with her ignoring the real conditions of the patient and her confort. She is in pain, despite of whatever dosage of morphine, she is crying and full of angusih despite alprazolam and all these useless drugs, she cannot sleep despite diapezam. It seems that they have learnt an ABC of treatment and they apply these standards to everyone.
This is hell for her. There is no peace, there is pain, anguish, fear, crying and horror. She confuses my sister with another sister, her daugther with another one. With a high dosage of IV diapzepam she sleeps for 30 minutes and awakes. Really really bad doctors, unable to pay attention to her neurological problems and provide a proper treatment.
Besides, life expectancy differs in a incredible wide range. Doctor A says months, doctor B says from 4 days to 15.
Hugs
JoseOh, Jose, finally, Hospice! I have one question for you…have they ever checked her Amonia levels, you have never told us that. I hope your sister and all of you can find a little relief now and have some good moments, something has to be causing this and it’s awful that they could never find out what. Our thoughts are going out to you.
Jose,
We had several episodes similar to what you are describing. On one occassion, my Mom’s ammonia level was high. On another occasion she was found to have a bladder infection. The third incident was due to a drug she was given when her heart went into A-fib. I know how hard this is to watch a loved one dealing with this.
You and your family are in my thoughts and prayers. Please remember to take care of the caregiver (YOU!).
sending hugs….
Pam
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