PCR150 in St. Louis
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Hi Paul,
Thank you for writing. I am sorry to hear about your diagnosis and that you are having insurance problems. This cancer can be very hard to diagnose as in your case, and doctors often have to do a lot of heavy lifting to persuade insurance companies. I suspect the roadblock you describe has to be resolved between your doctors and insurance, but in my own experience, often it falls to patients and caregivers to frequently contact the various parties to be sure balls aren’t getting dropped along the way. For rare illnesses, sometimes it takes more effort with insurance as their reviewers do not have specialized experience.
I hope this can resolve quickly so you can start treatment. Please let us know how this turns out.
Regards, Mary
Hello,
My name is Paul, I have been trolling around here for a while but this is my first post. I was suspected to have cholangiocarcinoma back in January and officially diagnosed in early April. I have had an elevated CA-19-9 since at least January and my doctors say they can see dominant strictures on my liver when they perform MRI’s. They have not found any positive tissue samples in the cell pathology or FISH test yet. They want to get me started on Chemo and then put me on a transplant list but the insurance says without a positive tissue test they will not pay for anything. The oncologist have already done a peer to to peer with the insurance company but I do not believe the transplant surgeon who diagnosed me has been evolved yet. I fear the longer we wait the worse things can get. Right now they see no evidence of cancer anywhere else in the body and they say I am an excellent candidate for a transplant but without first going thru cancer treatment they will not put me on the transplant list. Anyone have experience with this? Thank You,
Paul
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