Periampullary Mass???
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He also has lymph node involvement. From the start they said he was not a candidate for surgery. He is going to Mayo so I trust them.
Crissie, when my husband was diagnosed 8 years ago at 73 yrs old, that is exactly where his CC was located. He had a Whipple Surgery where they removed the head of the Pancreas, the Gall Bladder, the Duodenum and rearranged some other stuff. This was called Distal CC. It did return 2 times to the area where the Duodenum used to be. They did remove the head of the Pancreas as that was the best way to see if it invaded the Pancreas and it had not. It did buy him 5 1/2 years as they never recommended chemo. radiation. At one point on the first return of the CC he had Cyber Knife. The CC emanated from the Duodenum/Ampulla of Vater. I am not understanding why they can’t do a Whipple? Take care and be strong.
This is what I found online:
Periampullary tumours are those that arise within 2 cm of the ampulla of Vater in the duodenum
Tumours that fall under this group includes four main types of tumours 1,4
• pancreatic head / uncinate process tumours – includes pancreatic ductal adenocarcinoma involving head and uncinate process of the pancreas
•lower common bile duct tumours – includes types of cholangiocarcinoma involving the intra-pancreatic distal bile duct
• ampullary tumours – those originating from the ampulla of Vater itself
•periampullary duodenal carcinomaAlthough patients with periampullary tumors have similar symptoms at presentation, they exhibit different clinical outcomes according to the origin of these tumours.
No I don’t know how they made the decision. My dad is in MN and I am in TX. I thought my dad said they think it came from the gallbladder or something. He has lymph node involvement but no other masses. They said they can’t do surgery….he is on palliative care. Gem/Cis every other week and replacing his stent every 3 months. He is tolerating it well and after his first 2 months the tumor shrank from 2.5 to 1.7 cm. Now it is stable at that size for about 5 months.
In reality…the cancer could be pancreatic and invaded the bile duct? I am just trying to wrap my head around this.
crissie….These periampullary tumors arise in the vicinity of the ampulla of Vater. As far as I know it is difficult to determine if this is a primary cancer or whether it originated from either, the pancreas, duodenum, distal common bile duct of the Ampulla of Vater structure itself.
You had mentioned that the doctors call it bile duct cancer hence, they must have determined that the primary Cholangiocarcinoma. Have they mentioned to you as to how they made this determination?
Hugs,
Marion
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