pet peeves of cancer.the small stuff i hate. go ahead and add your own

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Viewing 15 posts - 46 through 60 (of 100 total)
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  • #38632
    irenea
    Member

    I hate when somebody looks at me and while he/she does not say a word, he/she is clearly thinking “I thought people were cancer LOST weight. What’s up with her?”

    #38631
    lisa
    Member

    I hate that our beloved caretakers and family have to suffer while we fight this terrible disease.

    #38630
    kimmie
    Member

    I am just a family member, it’s my mother who has CC. I’ve been back on this website multiple times a day since a week ago Friday when my mother was told her CC had returned after her resection July 2009 and chemo through December.

    I’ve avoided reading this one post, too afraid to read first-hand what you all hate about this disease the longer you deal with it. I should’ve read it sooner though, I have laughed, cried and gained more of an understanding of what my mother must be feeling, and what she may start to feel as it progresses.

    Even though I’m not a CC patient, and not even a caregiver (yet), I’d like to add a few:

    – I hate that my mother is only 63 and facing this beast.
    – I hate this question that’s usually just below the surface of my subconscious and occasionally very much on the surface: why HER of all people?
    – I hate that my kids, ages 9 and 11, won’t have her around longer. And that my sister’s youngest, who is 4, eventually may not even remember her.
    – I hate that I can’t say or do anything to help her feel better emotionally. I feel like it’s my “job” as eldest daughter to help cheer her up and keep her mind on happier things. But we don’t have the deeper, “tougher” conversations. I guess that will come.
    – I hate that there is no solution, no cure, no way to make this go away. I am a “get it done” kind of person, and there’s nothing I can do to fix this.
    – I hate that my mother’s soul mate, her husband of almost 46 years, can’t be her rock during this awful time. His dementia has taken our “old Dad” from us and he just isn’t the same. She needs him, we all do. He was always the strong one in the family, the one we all relied on.
    – I hate that I can’t sleep well anymore. That my brain kicks into high gear when I turn the light off at night, that I wake up every 2 hours or so, that I lay in the dark and vacillate between optimism and total despair. I swear most nights I hear this faint whisper in my head saying “cancer… cancer…” over and over.
    – I hate all the not knowing. Not knowing what the plan is yet for palliative measures for this recurrence, how long she will live, what the symptoms will become as it progresses. Not knowing how I will function as a human being once she is gone.
    – I hate that my husband doesn’t understand. He is the most incredible husband, father and son on the face of the earth. He bends over backwards to help me, emotionally as well as with the kids, the house, etc. Always has. But sometimes he’ll ask, “What’s wrong?” Why doesn’t he realize that my mother’s cancer is on my mind 24/7? I feel like that, unless it’s your own mother, you just can’t understand how I feel.
    – I hate that many of my friends aren’t sure what to say. That they feel like not talking about it somehow helps me.
    – I hate that I never had any desire for any profession in the medical field, that’s always been my sister’s calling. Yet here I am, able to spell cholangiocarcinoma, I know the difference between hemoglobin and hematocrit, I can read a CT scan, that I even know what a tumor marker is let alone normal ranges. That I actually enjoyed watching the TV monitor during my mother’s lower GI procedure – I thought it was the coolest thing.

    Whew. OK. That was waaaay more cathartic then you can ever imagine. Honestly, I feel more clear headed than I have in almost 2 weeks.

    #38629
    irenea
    Member

    Amen, Betsey!

    #38628
    lisa
    Member

    Irene – I’m so with you on those two pet peeves.

    “You look good” – right now I am orange and hairy.

    #38627
    irenea
    Member

    Oh wait — being accused of “playing the cancer card.” That’s a favorite too.

    #38626
    irenea
    Member

    How about: “You don’t LOOK sick!”

    #38625
    kathyb
    Member

    I hate being the person with cancer. The selfish part of me would rather be the caregiver. I’ve been both.

    I hate belching like a man, having gas, and the tears that come so easily. Things that did not describe me “before cancer”. I told my husband recently that I am not the person he married. (He replied that he wasn’t either. Truth is, he’s better than the person I married.)

    I get down when I think about being or becoming a burden to him, while his focus is to be optimistic, do the right things, and for me to get better. He actually says he feels blessed to be able to take care of me.

    I HATE CANCER, but I am very much blessed. Thank you, God.

    #38624
    betsy
    Member

    Donna9,

    I like that idea much better and actually comforts me. I was at a July 4th picnic today and was told that my suffering in this life was redemptive and was helping my deceased brother in the afterlife. I really didn’t know what to say to that.

    Betsy

    #38623
    donna9
    Member

    Betsy, my husband had said for months, God doesn’t give you what you can handle,. God helps us handle what we are given…….

    #38622
    devoncat
    Member

    You guys made me smile because it brings to mind Caroline Stoufers (I hope I spelled that right) video that high school students made with her and was played at her memorial service. Someone comes up to her and talks about coffee enemas and the next scene you see her scouring the coffee aisle with a twinkle in her eye. Thanks for bringing to mind an incredible woman and one of the first people I “met” on this site.

    Kris

    #38621
    kristin
    Member

    Oh yeah… And I’m SO tired of friends’ cousins who come bubbling up to me with some book about how someone cured their early-stage breast cancer with fasting/ cottage cheese/ rays of colored light/ soybean extract/ breathing exercises. Then they always insist that I must MUST try this! Now! Immediately!

    Arrggghhhhhhhhh!!! (says Ms. Hippie-Holistic-me.) Do they think I’ve really been sitting here for 6 years without doing any reading or research of my own?!

    Kristin

    #38620
    darla
    Participant

    Betsy,

    My answer to that is “What ever made him think I am that strong?????”

    Another one I’m not to fond of is “Everything happens for a reason”. I still haven’t figured out what that reason is!

    Darla

    #38619
    betsy
    Member

    I hate being told that God never gives us more than we are designed to handle. If one more person says that to me or gives me a book about it, I’m going to scream.

    Betsy

    #38618
    snezzie
    Member

    Linda,
    You are so sweet. Those were lovely words.

    snezzie

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