PET scan results

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  • September 18, 2013 at 8:53 am #75656
    gavin
    Moderator

    That link didn’t seem to work Marion. Try this Susie –

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=76095#p76095

    Gavin

    September 18, 2013 at 8:51 am #75655
    gavin
    Moderator

    Hi Susie,

    Sorry to hear this latest news from you. But please do not give up hope and stay strong. That’s great that you already have an app lined up with your local onc to discuss the new plan and I so hope that it works better for you than the last one. And of course you know that we are here for you and please let us know how everything goes for you. My fingers are crossed too!

    Hugs,

    Gavin

    September 18, 2013 at 7:01 am #75654
    marions
    Moderator

    Susie…..here are two conversations focusd on FOLFORI
    http://www.cholangiocarcinoma.org/punbb/search.php?search_id=1927721189

    By clicking on “go to post” bottom, right side, you will be able to read the entire thread.
    Good luck, dear Susie, and please don’t hesitate from reposting your question so that it can’t be overlooked.

    Hugs,
    Marion

    September 18, 2013 at 2:11 am #75653
    lainy
    Spectator

    Susie, best of luck and you already know the rest….keep us updated!

    September 18, 2013 at 1:42 am #75652
    sw55
    Member

    Thanks Lainy! I have an appointment Thursday with my local oncologist to discuss the new plan. I will probably start in a couple of weeks.

    September 18, 2013 at 1:34 am #75651
    lainy
    Spectator

    Gee wiz, Susie, I am not versed in chemo but I am sure its frightening to change cocktails. But keep in mind that a new chemo may be just the one that zaps! We are all with you 110%. Do you know when you will start the new one? I know we have members who have been on those you mentioned and I sure you will hear from them. So, get out the pink boxing gloves and I hope this is just a tiny bump in the road. We are all here for you!

    September 18, 2013 at 1:08 am #8908
    sw55
    Member

    I just got home from Houston for my quarterly PET scan at MDA and my results weren’t great. The Xeloda/Gemzar is not working and there has been some progression. I will be starting FOLFIRI and be adding Tarceva a little later. I am a little freaked out about this chemo combination and would like to hear from others about your experience with these drugs.

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