Discussion Board Forums General Discussion Phase 1 completed

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  • #76819
    pamela
    Participant

    Dear Carl,

    I am so happy you got the gift of seeing Lynn smile, and happy for Lynn that she had something to smile about. Great news about the 70% improvement. Love and hugs to you both.

    -Pam

    #76818
    marions
    Moderator

    Carl….congratulations on the incredible response to the treatment. Carl, I like to compare this cancer to that of a chronic disease hence, keeping things stable is success in it’s own right. Gemzar may very well accomplish that and allow Lynn the quality of life she deserves. Although, numerous tumors are visible, the burden has been reduced in size. The glass is half full, dear Carl.
    Hugs,
    Marion

    #76817
    willow
    Participant

    Fantastic! Thanks for the update on Lynn.
    Willow

    #76816
    kris00j
    Participant

    Carl, what great news! I haven’t been on in a few days and this is one of the first posts I read! 70% improvement is unbelievable!! And a huge relief for Lynn. Give her a big hug!

    #76815
    mcwgoat
    Participant

    Hi Carl,

    Such great news!!! I’m glad Lynn’s sense of purpose has returned. That means she’s strong and ready to fight again. Good luck starting the Gemcitabine next week. Carry on!!!

    Peace, Hugs & Love,
    Mary

    #76814
    lainy
    Participant

    Oh My, Carl and Lynn what a great report, well worth the wait. Someone else posted today about going off GEM/CIS and just being on GEM but can’t remember who. I know it was today. Maybe Pattimelt. Sorry short memory right now. I can only imagine how you felt seeing Lynn perk up, worth any price! Carl, you too have helped on this Board and our thanks is in posts like yours. I am so happy for you both, enjoy the news!

    #76813
    kvolland
    Participant

    Carl – I think it sounds pretty good. Attitude is so very much a part of this so if Lynn feels so positive about it then that is half the battle. 70% sounds pretty good so does maintenance which means stability which is equally as good.

    Will keep you in thoughts and prayers.

    KrisV

    #9066
    scheitrumc
    Participant

    Hi all,

    I want to give you an update regarding Lynn.

    Lynn recently completed 8 cycles of Gem/Cis. We had some challenges along the way. After cycle 6 we were ready to quit. But then the onc added Emend and steroids for the last two cycles. What a huge difference it made in Lynn’s ability to cope.

    We had a CT scan last Friday and met with the onc today. She was very pleased with Lynn’s progress. She did a wonderful job of showing us – in a side by side comparison – Lynn’s CT in May (at her worst) and the one from Friday. What an incredible improvement. Our onc suggested 70% improvement from that scan. We are so very grateful.

    The reality of the latest scan was also clear. The written report said something like the tumors in her liver were “too numerous to count”. Including the mother ship – a giant blob sitting right in the middle.

    She suggested the next phase of treatment as “maintenance” chemo. Just gemcitabene but no Cisplatin. She even consulted with the doc at Sloan whom we’ve used for second opinion. They both felt some maintenance chemo might help until further assessment suggests another treatment. We talked about liver directed therapy but her concerns were 1) we aren’t dealing with one big tumor but tumors throughout and 2) not lose sight of the fact that the lymph nodes look good now but liver directed therapy will not keep them at bay. Valid points in our view.

    So next week we start a new regimen of Gem 3 weeks – 1 week off for an undisclosed period of time.

    I have to say I was close to tears in the office as Lynn saw the very different views of the 2 CT scans. It seemed every step the onc moved the image, Lynn’s smile got wider. She left with a sense of purpose that I had not seen in previous doctor office visits. How great is that.

    Lots more to say but too much for a single blog. So I’ll end with that for now…..

    To ALL moderators and other support persons who lovingly give your time and kind words to help others…..thank you. What you do each and every day to help the spirit of so many patients and caregivers is awesome. I wish I could find a better way to say thanks.

    Carl

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