photodynamic therapy for cc
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Hi Varun,
No trouble at all, I hope the links and stuff will be of some use to you.
As to how PDT worked for my dad, well first off, the specialist who carried out the procedure said it went as best as it could have possibly have gone. The hope was that the PDT would shrink the tumour as best as it could, but that it would not cure my dad. You ask if it helped, and I would say that it did in that it bought my dad more time. And from further meetings with his specialist and the gp after he had his PDT, I got the impression from them that they felt that dad lived longer than what they thought he might do.
Were there any complications you ask? And to that I would say no. We knew what the side effects would be, the sensitivity to direct light on the skin and the eyes and my dad went through all of that. Lasted about 8-10 weeks overall. And this point is something that I can not stress enough. Anyone who has PDT will be VERY VERY sensitive to light, both to their eyes and skin. I really can not emphasise this point enough. My dad had to cover up his skin and eyes for quite some time when he went outside. Even exposure to to a small amount of sun, not very strong would lead to him burning.
I hope that some of that is useful to you Varun, if I can help in any other way please just ask.
Best wishes,
Gavin
Hi Gavin,
Thank you so much for giving me all the information. I really appreciate you helping me out with this.
I will do some research on the links you gave me, also I’ll contact the hospitals you’ve mentioned.
PDT for cc has never been tried anywhere in India like the way they have tried in the Uk or the USA specifically for cc, maybe due to low incidence of this cancer. How did it go for your dad? Did it help? Were there any complications?
Thanks so much again for taking time to help me out! God bless you and everyone else who go all out and help people on this site!
Varun,
This is the specialist that did my dad’s PDT for him and I understand that he was involved in a lot of the research and trials into PDT for CC patients in the UK.
http://www.dundee.ac.uk/surgery/onestaff2.php?ID=60
Best wishes,
Gavin
Hi Varun,
Sorry to hear about your mum. If you search for some of my older posts you can read about my dads experiences with his PDT. I am not a doctor, so I can not say if at this stage PDT will benefit your mum. Do they not do this type of treatment anywhere in India?
Here is a list of hospitals that I understand it do PTD as a treatment for CC in the UK.
University College Hospital London
QueenHello and so sorry to hear about your mother. IF you go to our search engine at the top of the page and type in PDT you will get lots of information on older posts. I really don’t know that much about PDT but perhaps someone else on our Board can answer some of your questions about it. Sending you and your mother good thoughts.
Hello everyone,
I am from bangalore, India and my mother aged about 56 years is a follow up case of cholangiocarcinoma which was diagnosed in 2007, subsequently she underwent a palliative segment III hepatico jejunostomy in view of a hilar mass infiltrating the right artery and portal vein confluence extending into the portal vein. PTBD and metallic stenting of the RHD/ anastomosis was performed in jan 2008,she later received 11 cycles of chemo with gemcitabine/oxaliplatin.Again in july 2009 with stent block and disease progression she underwent PTBD through the previous metal stent.She subsequently received intra luminal brachytherapy with 12gy-1 fraction at 1 cm.Now in march 2010 an mrcp has shown disease progression with block of right and left biliary system and cholangitis.
After visiting a lot of websites, i found out that photodynamic therapy can help in keeping the stents unblocked, if we could consider it now at this stage,will it be beneficial? she already has 2 metal stents (one inside another), so im not sure if anymore stenting can be done.
Also, where is PDT for bile duct cancer offered in the world? in which hospitals in the world is this treatment offered for bile duct cancer (I live in India, but we are willing to travel if it helps.. any specific hospitals maybe in the UK, or the US or anywhere else)
Would appreciate any responses to this post.
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