November 13, 2013 at 7:21 pm #77170pcl1029Member
May I ask how old are you?
If you want to live, and enjoy life as you suggested, I strongly recommend you to go to ER -and ask for a CT scan of the abdomen and pelvis, this is the quickest way to get a ct scan, Just say I worry about my illness to grow further. then choose one and go to ( either Mayo, USC or UCSF,Mass General, or Washington hospital at St. Louise Mo. )to get a multidisciplinary board review for you and get the most up to date information and diagnosis for your condition. As you said your doctor guessed you may have CCA; this is a good time to confirm the problem.
BTW, I will not have this chance to response to you had it not an early diagnosis was made because ,by the grace of God, I asked for one CT scan just for out of curiosity . It turns out the tumor I had, had been grown for a couple years before the diagnosis.
The worse thing is ,if you have ICCA, it can grow inside for years without symptoms . I did not have any symptoms when diagnosis is made.it is just happened this way so I can live to and talk to you and other members on this message board for the past 55 months ,and hopefully for many years to come.
Since you mentioned you are very determined to live : then let me say one thing more;Nowadays ,chemotherapy may be just a pill taken by mouth, not the IV you think you will have with side effects; i think this is very close to having treatment without the awful thought of suffering from chemotherapy. it is also true that there are better anti-emetic drugs on the market to control the side effects of having chemotherapy ; simply put, the treatment is a lot better than just 5-7 years ago.
But the final decision is all YOURS to make. Whatever your free will leads you.
God bless.November 13, 2013 at 7:05 pm #77169j-r-a-cayman1live-comMember
I FOUND OUT IN 2011 AND IT WAS HARD TO DIAGNOSE. I HAVE NOT DONE CHEMO OR RADIATION, THAT IS A TOTAL GUESS ON THE DOCTORS PART AND I WANT TO FEEL GOOD.I ALSO AM VERY DETERMINED TO LIVE ,VERY DETERMINED. I ALSO DO NOT LET THIS WORRY ME , IT IS WHAT IT IS.November 13, 2013 at 6:41 pm #77168pcl1029Member
How did you find out you have cholangiocarcinoma?
How do you monitor the progress or the lack of progress of the disease or just do nothing?
Any other form of treatments that you can share?
What type and stage do the Cca( intra or extra hepatic) when first diagnosis.
BTW, plasma jet is an alternative tool for use the traditional electrosurgery tools for cutting tissue etc. now widely used during surgery.
In my opinion,it looks like the cutting processing using plasma jet is slower than the electrosurgery tools but may be of interest for using when cutting is near or abut the artery or veins.
God bless.November 13, 2013 at 6:30 pm #9121j-r-a-cayman1live-comMember
I am trying to find anyone that has had a plasma operation for cholangiocarcinoma. I have heard that this cutting edge surgery has a high success rate ? I have been diagnosed with this disease in 2011 and have made it over two and a half years with no chemo or radiation.
Thanks to all and God Bless,
John Barry Ohio 419-515-4157 email@example.com
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