Thanks Beatriz! And yes, the research will most certainly continue! And many many thanks to everyone who responded to the survey as well. We had a spectacular response from everyone. Thank you all!
Joe, many thanks to you as well for your points and observations. You are right in that more questions should be asked and I got in touch with Donna about your concerns regarding this. Future surveys will be done on other issues that affect patients and they will be more detailed regarding collecting of info/experiences etc.
I appreciate how short you kept your survey, but it should probably have more questions. My mother had both of these procedures but the survey only lets you select one. I would ask a bunch of question about effectiveness, recovery time, how often did they have to be changed.
I don’t really feel the need to rate my last experience on Mcdonalds, but I’d be willing to spend some time on this.
This survey is an incredibly important milestone in the involvement of cholangiocarcinoma patients in making treatment decisions. It is the first time that CCF has been asked to participate in a patient-centered research initiative in coordination with many leading cancer institutes. This research has the potential to not only measure the effectiveness of the procedures, but to also ensure that stakeholders can be fully informed about the critical choice between having an ERCP vs. PTC as few studies have compared their merits and disadvantages.