Protocel or Wheat Germ Extract (Avemar) for Cholangiocarcinoma

Discussion Board Forums General Discussion Protocel or Wheat Germ Extract (Avemar) for Cholangiocarcinoma

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  • #54163
    halinamary
    Member

    Hi,

    I am also looking into using Avemar for my mom. Memorial Sloan Kettering has a website listing various herbs. Both Avemar and Protocel are discussed.
    Avemare sounds safe to use but MSK does not recommend using the Protocel.

    http://www.mskcc.org/mskcc/html/69160.cfm (Protocel)
    http://www.mskcc.org/mskcc/html/69418.cfm (Avemar)

    Hope this helps.
    Halinamary

    #54162
    marions
    Moderator

    Depaak….As Gavin has mentioned there are several postings regarding Avemar.
    This link will lead you there:
    http://cholangiocarcinoma.org/search.htm?cx=009850667938309428387%3Adc0sfkrlh9u&cof=FORID%3A11&q=Avemar&sa.x=24&sa.y=9
    Please, keep us posted.
    All my best wishes
    Marion

    #54161
    gavin
    Moderator

    Hi Deepak,

    I have never heard of Protocel or Avemar either, and I can’t recall any posts here on the site about them. But, you could use the search forum function at the top of the page to see if that throws anything up. But I would advise that should your mum wish to try either of these 2 alternative measures then please consult with her doctors to see what they say about them.

    My best wishes to you and your mum,

    Gavin

    #54160
    jim-wilde
    Member

    I haven’t tried any, but I think recurrence is mostly in the lap of the gods. I’ve been very lucky to be clean for 2 1/2 years since a resection, but think it’s largely a crap shoot to continue clean. I guess it would be reassuring to be actively doing something, but I haven’t a clue as to what caused this horrible disease to select me, nor what to do to keep it from returning. I think the best you can do is maintain a positive attitude, live each day like it’s the last, enjoy family, friends and all small things in your life. I try to lead a healthy life (balanced diet, exercise, etc.). Also, I can say I have had the extremely good fortune to meet a load of wonderful people a s a result of cc. But I don’t ‘believe’ in chiropractic either, so feel free to ignore my comments entirely.

    The best news, as I understand this disease, is the longer out in time you go clean, the better the chances for no recurrence. Some may have more constructive or useful comments, for I surely don’t have the magic answer. It may be the psychological effect of consuming wheat germ, etc., has value beyond physiological effects on the body.

    #5847
    deflepp
    Spectator

    My mom had sucessful surgery of hilar cholangiocarcinoma. Now I am hoping she can take proactive alternative medicine or other measures to avoid any recurrence of the cancer.

    I am thinking of advising her to take PROTOCEL or WHEAT GERM EXTRACT (AVEMAR) to take regularly.

    Has anyone tried these alternative medicines.

    Thx
    D

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