put on a little lip gloss and deal with it…..
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Hi Jacque and welcome to our wonderful family! You may find out some more on the Spleen by using our search engine at the top of the page,although I don’t recall any posts but I could be wrong. You might want another opinion since so many other “things” are involved. The good news is they now know what the problem is and a game plan can be put in to play when you feel confident that it is what you want to do. Good luck and please keep us posted.
Hi Jacque:
My former Brother in law had his spleen removed about 28 years ago and has not had any issues at all.
So sorry to hear of your mom’s CC. And welcome to the site that no one really wants to join. Please come back often, as you will find a lot of excellent information on this site.
As my husband’s caretaker, I’ve learned over the past 2 1/2 years to never take ‘no’ for an answer. If you don’t like what you are hearing from your Mom’s doctors, look for another doctor, get second and third opinoins and above all find a doctor who is familiar with Cholangiocarcinoma.
Mayo Clinic has many doctors who are well versed with Cholangiocarcinoma. My husband Tom is headed back to Mayo as the doctor here in Green Bay Wisconsin are unable to get a stent into his liver and he currently has an external drain because the bile can’t get past his inoperable tumor in the remaining bile duct. The Mayo doctors are pretty sure that after reviewing all his scans (pre tumor and post tumor) that they can get an internal stent in place.
After Tom was given a 6 month prognosis, we got 2nd, 3rd and 4th opinoins and decided to go for broke with Radiation and Chemo. We are at the 6 month mark right now, and Tom is still going strong. The Radiation and chemo (Xleoda) have ‘killed’ the tumor and all of his numbers are coming down drastically. Even his tumor markers and his bilirubin levels and the most stubborn one of all, his Alk Phosphate which has stubbornly stayed at about 1,500 is now down to under 1,000. Good news all the way.
Keep the faith, go with God and KEEP KICKIN’ THAT cancer.
Margaret (My husband and Cholangiocarcinoma)
Hi all! My name is Jacque. My dad is Tommy and my mom is Judy, who has cc. She has a klatskin tumor. Today we learned that the cancer is now in moms spleen. We have been here in the hospital since Friday because the dr. thought it was a blood clot. Today the scan showed that it was not. Tomorrow the dr is going to visit with the radiation therapy dr. and a surgeon to see exactly what options mom has.
We were wondering if anyone has had their spleen removed, if so what all did they experience during surgery and after? And has anyone had any radiation to the spleen, and if so what did they experience.
These are possible options that the dr. discussed with us today. We realize that this would not be a cure, but pallative care. But how do you know what risks are worth taking. ?????
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