Viewing 15 posts - 16 through 30 (of 88 total)
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  • #40878
    marions
    Moderator

    Sally…..fantastic news. Another surgery – another good day.
    Fingers are crossed for a quick recovery.
    Please, keep us posted.
    All my best wishes,
    Marion

    #40877
    lainy
    Participant

    YEA!!!!! Did you ever meet a group of people who love surgery more than we do?
    Mmmm perhaps we should start a link of Christmas Miracles for the next 2 weeks!

    #40876
    sallypa
    Member

    THANK GOD. we just got a little christmas miracle. dr fraker didnt see any more tumors so he is going ahead with my sisters operation.

    #40875
    sallypa
    Member

    well, mri and pet scan are done. we had appt with dr today. they now see a tumor in my sisters ovary and another in her uterus. this is added to the previous one in her liver. she has been scheduled for surgery tomorrow for a few weeks. dr said today he is going to first look at those new tumors in the o.r.. if he doesnt see more than just what was shown on the mri and pet than surgery is still on. if he sees more than he cant do the surgery.he is afraid there are more microscopic cells or tumors there that arent visible on the scans. he said cc usually doesnt spread to that part of the body but in rare cases it has. we are praying all goes well tomorrow and he can remove the tumors. it has been such a hard six months. my sister is dealing with this. my father in law is having a hard time dealing with the radiation for his colon cancer. so many people in our family are being diagnosed with cancer. it is really hard to imagine. this doesnt make the season very merry. it is christmas and we are praying for a miracle.

    #40874
    marions
    Moderator

    Sally….I can’t think of one single incident (on this site) in where this cancer had metastasized to the ovaries. A few exceptions are those with a prior diagnoses and treatment of ovarian cancer who then, but at a later time were diagnosed with cholangiocarcinoma. Therefore, my hopes are high for the lesion to have another explanation.
    Thinking of you and sending my best wishes your way,
    Marion

    #40873
    lainy
    Participant

    Dear Sally, I am sorry about the latest news however yhour Sister’s bravery will not stop as she will continue to find out what is need and proceed to her next game plan. Wishing for you all the strength that is needed and let’s throw in a whole lot of good luck! Please keep us posted.

    #40872
    pcl1029
    Member

    Hi,
    A PET/CT scan will answer the question for you whether it is a cyst or benign or malignant.
    MRI may or may not tell it is ovarian cancer or not; and the PET/CT scan also can tell you whether the recurrence is hot or not.

    Below is a copied message about PET/CT scan usage from the experience forum under radiation.

    “I will recommend PET scan right after CAT or MRI if recurrence is confirmed or small lesions detected by MRI but not sure whether they are cancerous or not.This will give the doctor more info about the lesion such as whether the lesion has metastasized or give the doctor a more informed idea what he/she saw on the M R I or CAT scan indeed is a tumor that has metabolic activity(maxSUV) value and required immediate attention such as chemo therapy or resection,RFA,chemoembolization,radioembrolization,PDT,SBRT .
    By doing so,the doctors will not be confused with and discard the lesion as being part of the artery or hepatic vein or other forms of lesions and ask the patient to return in 3 months to repeat the scans to make sure.As you all know, 3months is a lot of valuable time for patients as well as caregivers. Who wants to wait for another three months? I think this is the part of early detection that we,ourselves, can monitor and provide the early benefit of more treatment options to the patient.

    PET can find or confirm cancer metastasized activities in the other parts of the body.PET may not be a good choice to locate NEARBY metastasized cancer activity such as the lymph nodes that are very close to the primary site of CC because the closest distances between the lymph nodes and the CC.)

    PET Scan allows visualization of CC because of the high glucose uptake(SUV) of the bile duct epithelium(the lining )– the “Hot spots” will light up on the PET scan and show the relative cancer activity of the lesion by the SUVmax value.”
    God bless.

    #40871
    sallypa
    Member

    i thought we had good news. we met with my sisters surgeon dr fraker and he said he could operate on the tumor. he scheduled surgery for december 15. after this meeting my sister had an ultrasound and now they have found a mass on her right ovary. i dont know what this means as far as surgery or treatment. dr fraker has not seen the results yet. a mri is scheduled on december 9. i dont know if this is the cc that has spread or if it is ovarian cancer. i am hoping and praying it is just a cyst or benign tumor. so far they are just calling it an adnexal mass and from my web searching that means it could be cancer or it could be benign. i couldnt find any reassurances. i just dont know how much more she can deal with. she is so brave and is always looking to make everyone else comfortable and happy. i am praying for the best.

    #40870
    lainy
    Participant

    Sally, I had my own “rare” Cancer surgery 2 years ago. I have PET Scans every 6 months. At the top of my scar and on the inside at a lymph node it always looks ‘peculiar’. There are no changes at all in 2 years and they believe it is from the surgery. I think its just scar tissue as I get a lot of that. I am sure if the ONC felt anything amiss he would take it further. Two weeks until another biopsy is not too long a wait and there is nothing to gain by stressing out especially when Cancer thrives on stress. Wishing your sister the best. Guess we could make up another word here and call it an “anxibio” (anxiety/biopsy).

    #40869
    marions
    Moderator

    sally….could it be scar tissue from surgery or the radiation? We have seen it on this site. Stay hopeful, please.
    All my best wishes,
    Marion

    #40868
    sallypa
    Member

    my sister saw dr today about results from biopsy. dr said they took three samples from tumor and all came back negative for cancer. he wants to wait a few weeks and do another biopsy and see if tumor continues to grow. also wants us to talk to surgeon to see if it can be removed. my sister is still depressed as she feels it is cancer and they just probably did something wrong. i dont want to give her false hope at the same time i feel glad that the results were negative. she said dr gave no indication as to what it can be. this tumor is in the same place as the one that was taken out. is it possible it isnt cc? was wondering if anyone has had this experience or can give some kind of better explanation.

    #40867
    marions
    Moderator

    sally…….each case will be reviewed on its merrits re: surgery or radiation treatments or chemotherapy for this matter. Fingers are crossed for one or the other option to be considered. Hang in there and don’t give up on hope.
    All my best wishes,
    Marion

    #40866
    lainy
    Participant

    Sallypa, Teddy had Cyber Knife and I know it is very precise as it was originally developed for brain cancer. Also the tumor has to be under 7CM which your Sister’s is so that is the good part. As usual we have to wait and see. I know you will let us know and I am crossing everything for some better news.

    #40865
    sallypa
    Member

    my sister had her biopsy today. we will get the results on friday. the tumor is one centimeter right now but apparently it is in a bad place. it is right near the main vein of the liver. they were very concerned about hitting this vein when they did the biopsy. i dont know what that means as far as treatment goes. i dont know if surgery will be an option. we just have to wait and pray. does anyone know if cyberknife surgery is precise enough to deal with a tumor in this location.

    #40864
    marions
    Moderator

    Sallypa…try to stay hopeful and let’s await the biopsy results. Although the doctor suspects it to be a recurrence nothing is for sure until the biopsy results come in. So I am crossing my fingers that it turns out to be something else. Please, also remember that other treatment may be available for your dear sister. We have seen for tumors to respond to different protocols. Don’t give up on hope and please, keep us posted.

    All my best wishes,
    Marion

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