Question on Resection and Margins

Discussion Board Forums General Discussion Question on Resection and Margins

Viewing 14 posts - 1 through 14 (of 14 total)
  • Author
    Posts
  • #39535
    lsisman
    Participant

    My husband has the rigors infrequently but no one ever said what it was from and he hasn’t had them in about 2 weeks now. He may only have gotten it 2 times a week before. Incontrollable shaking and teeth chattering. So scary. This whole cc thing is a nightmare. My husband gets worse every week and worse pain added and you tell ALL the docs and they are clueless. I hope the surgeon appt next week is of help.

    #39534
    lainy
    Participant

    Just peeking around the corner to say hi, Bob & Donna. Bob, if those rigors keep us and we hope they don’t, come home to Phoenix and warm up!!!

    #39533
    32coupe
    Participant

    Hi Isisman and All,
    No nodes involved but lacked clear margins. Did have chemo and radiation follow-up after a long recovery from surgery. And I had chills or rigors for many weeks after surgery. To the extent that my wife made up a bed for me in the living room to avoid stairs to the bedroom and put an electric blanket on it to help me deal with the rigors.

    I am now experiencing rigors often as evidence of recurring infections due to duct issues. I usually end up in the hospital. We’re working on this…

    Blessings, Grace and Peace to all,

    bob

    #39532
    lsisman
    Participant

    32 coupe, did you have any nodes infected? You mentioend you didn’t have clear margins and have beat this ugly cc thing by 13 years now. Just wondering about the nodes. We all seem to try to find someone with the same detail and still turns out that no case matches any other. Thanks.

    #39531
    dmeek
    Participant

    Hello Michael. I read several posts from those with clear margings.

    In May 2004 I was diagnosed with CC with a 4.5cm tumor. I had a liver resection, 3/4ths of my liver was removed. The margins were clear, but only by millimeters. I had follow-up chemo (Xeloda pill form) and radiation for 6 weeks. Currently cancer-free at 6+ years.

    Did the chemo and radiation help prevent my recurrence, I really don’t know. And it’s unfortunate CC, like all cancers, is never predictable.

    I do hope the best for your dad as he continues with his treatments.

    Dale

    #39530
    linda-z
    Participant

    Hi Michael,

    I had clear margins with one lymph node (that they noticed) also with clear margins after resection. I started chemo after 3 months and everything showed clear (no cancer seen). Five months later, I have new tumors and mets to the lungs. I completely believe in radiation AND chemo after resection. With clear margins or not. You never know what may have been left behind that cannot be seen. Microscopic cells are still cancer left there. And in my case, that is what happened. The chemo just wasn’t enough to wipe out the cells left behind.

    Hope things are working out well now. My best wishes to you and your Dad.

    Linda

    #39529
    mlepp0416
    Participant

    Hi Michael:
    Welcome to the site that no one really wants to join. My husband Tom has CC and had a liver resection in June 2008. They removed 3/4’s of his liver and he did have clear margins. We questioned Chemo and were told that with clear margins, there was no reason for chemo.

    Needless to say, 18 months later, he turned yellow and we were told that he had a new tumor, unresectable because of it’s location. He was given 6 months by the VA oncologist. We were told that Radiation and Chemo were not an option. We did not accept that and went for other opinoins. Needless to say, we insisted on Radiation and Chemo and found new doctors. So here we are now, 8 months later, the tumor is shrinking (He is on Xleoda) and has had 28 radiation treatments. (so the VA oncologist can take his 6 months and shove it) ohh, that is harsh isn’t it?

    But it just goes to show that no one has an expiration date stamped on their butt! And if you are not getting answers or no hope from one doctor, then you need to run to the next doctor and find someone who knows about CC and someone who at least gives you hope!

    You can read more about my husband on my posts (My husband and Cholangiocarcinoma) Yep, back in March of 2008, I had no clue what Cholangiocarcinoma was and did not even know how to spell it. But I have learned a lot about this cancer in the months since that fateful day, and the one thing that I have learned is to ask a lot of questions, keep thinking outside the box, do a lot of praying, stay strong and be confident! And even with clean margins, insist on Chemo. Tom’s doctors that he has now are saying that even with clean margins, he should have had chemo and he most likely would not be in the position that he is in today if he would have had chemo back in 2008 after his resection.

    Go with God, prayers are coming your dad’s way from Wisconsin.

    KEEP KICKIN’ THAT cancer.
    Margaret

    #39525
    pam
    Participant

    Thanks, my dad has experienced these chills in the past before diagnosis and now recently. He has a slight temperature of 99 with the last few occurrences. He did not want to go to the hospital and came up with the idea of home health services to come and draw his blood with a doctor’s order. (He has been hospitalized 3 times in a month) It worked and luckily the results for infection were negative. Also with the chills, my dad’s jaw shook uncontrollable for a short time. That was hard to see him go through. I’ve used this site so much in the last couple of months. Everyone has been so helpful.

    #39528
    marions
    Moderator

    Pam….sudden chills have been discussed previously. They are called “rigors” and you may read up on some of the discussions by entering the word into the google search function, top of page. However, they differ from chills accompanied by a fever in that they come on suddenly only to disappear within a few minutes. It had been mentioned that nerve endings may respond to tumor invasion although, this finding has not been confirmed by a physician. I used to throw blankets on my husband and then simply wait it out. You are so right in that things move forward and then stand still. I guess this is why so many call the experience with this disease a “roller coaster ride.”
    Good luck with the upcoming treatment.
    All my best wishes,
    Marion

    #39527
    pam
    Participant

    My dad tried an attempted resection this June. Nothing was able to be done because the surgeon discovered that the cancer had spread to the pancreas. The surgeon said he would not have gotten any clear margins plus he would have had to perform a whipple, as well as a resection. The surgeon said it was not in my dad’s best interest. My dad is going to begin chemo, gemzar, next week. He is experiencing chills and a slight fever at night if he has exerted himself during the day. We thought his new stent was infected and had blood work. No infection, though. He has had chills before diagnosis and thought he had the flu. This happened several times. I feel like some times we have moved very fast on all of this and then other times we are sitting still in the water. Hope you and your dad get some rest.

    #39526
    mvb70
    Participant

    Thank you Marion and Bob for responding. This site and you are a wonderful support system.

    Bob, thank you for your prayers. I would greatly appreciate more information about yourself. Where was your tumor? Did you have chills after your surgery? Did you have chills during chemo and radiation? Do you still experience chills? My dad gets the chills after dinner. I would like to know more about your experiences. How did you feel after surgery? How did you feel during chemo? How long did it take before you felt good again? My dad is fatigued. How long before you felt like you had enery again? I greatly appreciate any information you provide. Thank you. I hope your recent issues go away. Take care Bob.

    Michael

    #39524
    32coupe
    Participant

    Hi Michael,
    I too lacked clear margins. Don’t know how common that is. Had chemo and radiation follow-up and then years of blood work, ct scans, ultra sounds etc. I am a now thirteen year survivor with some recent issues and have been told that this could still be tumor related, though highly unlikely. Even as I am writing this response, I am praying that the living God will bring healing and peace to your dad.

    bob

    #39523
    marions
    Moderator

    Michael…..I am not a physician and can only pass on what I have learned so far. Microscopic involvement is synonymous with cancer involvement. The tissue contained cancer cells; whether one cell or a hundred cells it is considered to be cancerous. Is there a specific size designating cancerous cells to be classified a tumor? That I don’t know. We have seen, on this board, many resections without clear margins. The truth is that even those with clear margins may still harbor cancerous cells in their bodies. Now, will these cells continue to multiply? We don’t know that. The precautionary measure appears to be a follow-up treatment with either one or, both chemotherapy and radiation. Your Dad will now be watched closely by the means of regular blood tests and regular scans. And, of course, he will have to make sure to report to the physician any change in his well being. Should there ever be and any sign of an emerging recurrence then it will be addressed. For now I take pleasure in knowing that his blood test looks great, your Dad has recovered and future scans are scheduled. I am happy for all of you. Congratulations. Michael, I hope this helped.

    Best wishes for continuous great reports,
    Marion

    #3722
    mvb70
    Participant

    Hi Everyone –

    I talked to my dad’s oncologist today and I am very upset. I guess it is my fault for not connecting the dots earlier. Today a lightbulb went on and I didn’t like what I saw. The October 14 surgery was deemed a success by the surgeon as he was able to get out the 2.5cm mass obstructing bile flow at the confluence. However, the biopsy indicated the margins were not clean. The doctors said the biopsy indicated microscopic involvement at the margins. I just thought microscopic involvement meant there were some cancer cells detected. The aim of the chemo and radiation treatments were to wipe out the microscopic involvement. My dad’s oncologist said today that he wants my dad to take some time off and come back in September to have an MRI and bloodwork to see the status of the tumors. I was blown away when the oncologist used the word tumors. We went from microscopic involvement to tumors. Does microscopic involvement mean tumors?

    The oncologist said my dad’s blood work looked good with the exception of one liver enzyme which was slightly over the threshold. The threshold is 120 and my dad’s was 143. The oncologist said they start to get worried when this is around 250 to 300.

    Is anyone out there that is a long term survivor who had margins that were not clean?

    Thank you in advance for your time and feedback.

    Michael

Viewing 14 posts - 1 through 14 (of 14 total)
  • You must be logged in to reply to this topic.