I’ll be filling in the survey, too. I can’t tell you how grateful I am to CCF & AMMF for being here. I remember the horror & panic of last August & I really don’t know where I would be now had you not been here to listen & support me. The more support I get from you, the more support my sister can get from me – what a wonderful circle of love & care.
The UK charity AMMF is supporting an initiative by the Rarer Cancers Foundation to support the NHS (the UK’s National Health Service) in ensuring that people with rarer and less common cancers are diagnosed at the earliest possible stage.
The RCF has been commissioned by the UK’s Department of Health to undertake research into the area of diagnosis of rarer cancers and AMMF has been asked to help with regard to cholangiocarcinoma. An on line survey form has been prepared by the RCF, and information is invited from those patients (or a relative or friend who has knowledge of the information required) who attended a GP practice in England only at any time between 7 Nov 2003 and 6 Nov 2009.
AMMF will be contacting supporters on our database direct with more details about this, but if you are in England and would like to complete this on line survey, the link is:http://www.surveymonkey.com/s/R3ZJRYR
Or, if you would like to receive AMMF’s supporting information re this survey, please contact me via AMMF’s website: http://www.ammf.org.uk