Recent CT Scan

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  • April 26, 2015 at 1:14 pm #87317
    nancypkeen
    Spectator
    marions wrote:
    Nancy….so nice to see you back on this site, but baffled as well by the recurrence of this cancer. I think the majority of us have a tendency to focus on the CA 19-9 tumor markers, as it provides something “concrete”, but it can be misleading as the rise can be related to other factors as well. But, then you know that already.
    I am wishing for total success with the completed treatment and that you can put this behind you again.
    Hugs,
    Marion

    Marion, you are exactly right and the doctor kept trying to drill that in my head. He told me several times to not get wrapped up in that CA 19-9 number. He said the permanent stent can cause a little inflamation that can influence the numbers. He implied that could be a new “normal” for Ron. More importantly, we need to watch the number and see if it continues to go up.

    Hugs,
    Nancy

    April 26, 2015 at 1:07 pm #87316
    nancypkeen
    Spectator
    Lainy wrote:
    Dear Nancy, in one way it was so good to see you but in another way not so happy about the news. BUT, it sounds like this return was caught early. I am curious if any of the DOCs mentioned cyber knife? All Teddy had was some radiation to bring the tumor below 6cm. I am hoping this is just a bump in the road and I know you will keep us updated. Sending you both the best!

    Good Morning Lainy,

    No further treatment suggested at this time because there is nothing to see. We were told there has to be a tumor or mass for the cyber knife. CT scan shows no evidence of cancer and the narrowing of the bile duct has been corrected with stent. All doctors are in agreement to watch and wait now. Ron looks good and feels good so we are trying to be positive with this new bump in the road. I will post news on his next round of blood work. Thanks to all for caring…

    Nancy

    April 24, 2015 at 6:12 pm #87315
    darla
    Spectator

    Nancy,

    I too am happy to see you back, but sad and confused about what is going on with Ron. I ‘m hoping for the best for you both on this part of the journey. Please update us as you can.

    Hugs,
    Darla

    April 24, 2015 at 4:59 pm #87314
    marions
    Moderator

    Nancy….so nice to see you back on this site, but baffled as well by the recurrence of this cancer. I think the majority of us have a tendency to focus on the CA 19-9 tumor markers, as it provides something “concrete”, but it can be misleading as the rise can be related to other factors as well. But, then you know that already.
    I am wishing for total success with the completed treatment and that you can put this behind you again.
    Hugs,
    Marion

    April 24, 2015 at 3:57 pm #87313
    lainy
    Spectator

    Dear Nancy, in one way it was so good to see you but in another way not so happy about the news. BUT, it sounds like this return was caught early. I am curious if any of the DOCs mentioned cyber knife? All Teddy had was some radiation to bring the tumor below 6cm. I am hoping this is just a bump in the road and I know you will keep us updated. Sending you both the best!

    April 24, 2015 at 12:52 pm #11054
    nancypkeen
    Spectator

    Hello, I have not posted since last August. My husband Ron had been cancer free for seven years following resection and a few cancer cells decided to return. I noticed his eyes were slightly jaundiced and he was not due for yearly follow-up for six months. We immediately went to see his oncologist and a CT scan showed a slight narrowing in the bile duct but no cancer. All doctors thought it was scar tissue. Three biopsies later showed a very small amount of cancer cells, no tumors. A permanent stint was inserted through the bile duct for drainage. We were given the option of watch and wait or treating it. We opted to treat with chemo and six weeks of radiation. We are from Virginia but lived in New York for six weeks to undergo radiation at Sloan Kettering.

    Blood work numbers, especially liver, continue to be a little out of normal range. CA-199 is 109 and for seven years it remained under 10. Doctors told us to not get consumed with the blood numbers because the CT scan continues to show no evidence of cancer. Doctors in Virginia and New York are still baffled as to why this cancer returned after seven years.

    We go back in one month for follow-up blood work so I will keep you all posted. This site always gives me such comfort when I read all the posts. As the moderators have mentioned, it is not a journey anyone wants to take.

    Hugs,
    Nancy

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