recently diagnosed mother

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  • October 31, 2010 at 7:45 am #43491
    jaynus
    Member

    thanks marion this is the first time ive been on the site and ive found it pretty helpful. This whole situation im in doesn’t seem real sort of like im floating around in a dreamworld if that makes any sense. Thanks for the encouraging words. I’m finding it very difficult to stay hopeful since she is past surgical intervention but i’ll try to stay strong

    thanks again
    Janet

    October 31, 2010 at 7:23 am #43490
    marions
    Moderator

    Jaynus….welcome to our site. I am sorry to hear about your Mom and the late diagnoses of this disease. Please, don’t feel alone, as the people on this board can relate to you all too well. As it happened in your Mom’s case it is only during surgery that the true extent of this cancer can be determined. The nodules simply were too small for detection, as anything under 1 cm is not visible on scans. (The plate itself has the thickness of 1 cm.) Your Mom’s positive attitude and the appropriate care may very well lead her to live with this disease for much time to come. That is my hope and wish for her. I am sure for others to chime in real soon and share their thoughts with you. Again, I am glad that you have found us.
    Best wishes,
    Marion

    October 31, 2010 at 5:50 am #4235
    jaynus
    Member

    my mom had been ill for quite some time with weakness, bloatingdistended belly, burping and gas. Doctors told her she probably had irritable bowel as well as stress related issues. After quite some time of symptoms persisting she asked for an utltrasound which for some strange reason came up clear. It was not until her second ultrasound in the emergency department where they had noticed a mass and then sent her for an MRI which confirmed her condition. She was diagnosed in August with cholangiocarcinoma and had a mass that started in the main bile duct and made it’s way into one side of the liver. They were convinced that it was operable and began preparing her for surgery. They inserted a tube into her bile ducts with a drain bag clamped off and sent her home to wait for a surgery date. It was at that point that she began getting sicker and sicker. We were told that this would have to be an explorative surgery as it was the only way to really tell for sure if the tumour was removable. When the surgery day came they opened her up and found two tiny nodules in her lower abdominal cavity. We were told that the cancer was in stage 4 and there was nothing they could do for her surgically. We are now waiting to see an ocologist and it has been quite some time. She has grown a little bit weaker. The cancer is mainly on one side of her liver and in the bile duct, but has not spread much further at this point. I am so concerned that during our wait for oncology (which has already been almost 2 months) the cancer might spread. I am also fearing that they are going to tell us there is nothing they can do for her. She is weak but can still make her way around on her own. She showers herself and can prepare small meals for herself as well, but she does vomit if she eats to much or too rich. Wonder if they will think she is too weak for chemo? Or maybe not eligible at all? She has been referred to palliative care, but I know some patients can stay palliative for years and defy the odds. She is very positive and is convinced she can beat this. She just turned 60 not even a senior yet! Is there anyone who has a story similar to mine that can give me some insight? thanks so much :(

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