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Rejected by Mayo?

Discussion Board Forums General Discussion Rejected by Mayo?

Viewing 15 posts - 1 through 15 (of 33 total)
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  • #94914
    taylorjm
    Participant

    Positivity, you are exactly right when you talk about inflammation. We have a friend that is a doctor and a nutritionist, and he says foods are are in two groups. Ones that cause inflammation, and ones that don’t. Sugars, wheat products, processed foods, all cause inflammation. Grass fed meats, farm fresh eggs, grass fed milk products, basically things are are home grown and don’t contain artificial ingredients do not cause inflammation.

    For instance, my wife as always struggled with her weight since she was young. She ate low fat/no fat foods for years because that’s what you did to control your weight. You didn’t wonder what was in the foods once the fat was taken out. A few years ago, she had to have her gall bladder removed. She found out it was because of all the low fat foods. The chemicals they use to replace the fat, will tear up your gall bladder. That’s when we started on a paleo diet. You don’t eat anything unless you recognize every ingredient in it. After eating grass fed beef and pork every day, and at least a dozen farm eggs a week, my cholesterol went down 30 points. How is that possible? The medical doctors say that red meat and eggs will raise your cholesterol, because that’s what they were taught.

    Sometimes, you need to do your own research, and double check your sources, and make a decision based on your findings instead of listening to a doctor who’s education came from studies paid for by the pharmaceutical companies.

    #94913
    positivity
    Participant

    Hello Everyone,
    Again it goes to personal decision and judging by each individual and what is going on in their body. I wonder if most if not all CC individuals have high inflammation in the body. My mom has very high inflammation which was determined by a blood test. This is when diet does play a factor, and we had to increase anti-inflammatory foods. That is not to say she will not crave certain foods she had pre-diagnosis and should not be deprived of it in order to maintain weight. It’s more of including these foods in the diet where it may have been lacking before. If one is sensitive and allergic to a food, one shouldn’t continue having it knowing it will aggravate the condition. This same with CC, there may be foods that may impact or aggravate it.

    Doctor’s don’t want to discuss or have the training or time to talk about nutrition or any other factors that can offer healing. They diagnose and treat with conventional medicine. This is something you have to research on your own, or perhaps get advice from a nutritionist or holistic health practitioner. I can also understand when individuals are at a point where there is progression and you are just trying to stimulate their appetite with anything they enjoy to eat. You can’t force certain foods if they don’t like it, and they must eat. If it is possible and the person is not reluctant, by all means include healthy foods.

    Does anyone have high inflammation with the CC?

    #94912
    taylorjm
    Participant

    I did quite a bit of research about the sugar part. Plus, the other thing to think about is the second a piece of bread hits your tongue, it’s converted to sugar. Bread/wheat products can produce more sugar in your body than a candy bar, so the wheat part is also related to the sugar intake.

    My research was all over the board. Some say it’s fine, others say it’s not. Of course since there haven’t been any scientific studies on it (because nobody wants to pay to find something as simple as sugar can decrease cancer risk), then many doctors say it’s fine.

    One point that really made me think was this. When they give you a PET scan for cancer, what do they have you drink right before it? A glucose solution, which is sugar. By drinking this pure sugar solution makes the cancer in your body light up like a Christmas tree on a pet scan. So, common sense would dictate that the cancer cells readily absorb sugar more than other parts of your body.

    So do you want to make the cancer happy and give it something it wants? Or would you rather change your diet, and maybe starve it? With diabetes rising like crazy, it’s obvious that our diets are full of sugar. So reducing it would be an overall health benefit anyway.

    #94911
    marions
    Moderator

    The American diet is dictated by the food industry, which at no means has shown to be a healthy diet. Only recently I wanted to purchase sour cream not the modified version, the real thing. I found only one company offering it: cream and cultures. All others added ingredients I was unfamiliar with. The question is: why have American’s been so infuenced by color, shape, texture, and a whole lot of what I call garbage?

    I have to agree with Catherine in that cancer patients have enough to deal one would not want to take away the little pleasure they have. Adding protein is an excellent idea, making sure they don’t loose too much weight is of most importance, but I would not worry about much else.

    The below link fits this conversation.
    https://www.cancer.gov/about-cancer/tre … k/_255_toc

    Hugs
    Marion

    #94910
    middlesister1
    Moderator

    Taylor/Positivity,
    I have to admit that although I’m sure it’s healthy for the body, I am surprised that an ONC said you must cut out sugar and wheat products. I have no doubt that env factors and food additives contribute to cancer and other illnesses we see( the science stuff that is not allowed these days), but once the cancer has taken hold, I have seen less about how environmental and/ or diet influences disease progression. My mother is doing great four years since diagnosis, and this was never brought up to us. We were told common sense things since liver was compromised . However, a few months after the Y90 , our radiologist said Mom should enjoy vacation to FL and enjoy a cocktail during the sunset (of course in moderation) I am not a medical practitioner, but I can understand that keeping healthy diet gives the patient a better chance of being up to the stresses put on the body from treatments. And, I’m sure certain foods are more nutritious and easier on the body for digestion.
    However, I worry that patients would think diet will affect progressions of tumors. I would be interested to know if there is any scientific evidence to say that diet could affect how the tumors respond to treatment or could slow/speed up progression. And, I guess I’m sensitive since we lost Dad to cancer this year as well, but we were never told/led to believe that changing his diet would have changed his prognosis or how the disease progresses. I am 99.99% sure that changing his diet would not have changed his progression of disease or quality of life. Life is hard enough when dealing with CC- I just want to make sure we are not needlessly telling patients that they can no longer enjoy the things (foods) they like without just cause.
    Please forgive me if I am way off base- I hope people can chime in with knowledge on this subject.
    love and best wishes to all,
    Catherine

    #94909
    positivity
    Participant

    Taylor,
    Great! It is so important to make dietary modifications. My mom’s diet had to be reevaluated and changes made. There are times that it’s a challenge, especially looking for high calorie nutritious foods so she doesn’t lose too much weight. I recommended skinless chicken also, if she must eat it. I emphasized reduction of meat intake and more fish. Can she take fish oil? Sugar intake has been an issue and have been working on it as well.
    How is the cannabis oil working out?

    #94908
    taylorjm
    Participant
    marions wrote:
    taylor….my motto for those being treated for cancer is: if it helps you and doesn’t hurt you why not try it.
    Everything seems to be moving along quite well. How is your MIL handling the current treatment?

    Hugs
    Marion

    She’s doing well. No real nausea, no hair loss. She’s changed her diet because the doctor that signed her marijuana script told her if she wants her best chance for beating this, she has to do three things, and has to do all three, can’t just do two out of three. 1. chemo 2. cannabis oil 3. cut out all sugar and wheat products. She’s trying to adjust to the diet part, but it’s hard for her. My family cut out sugar and wheat products and all processed foods a few years ago, so it’s pretty normal for us. We do still have things like hamburger buns with a hamburger, but we don’t have any bread, cereal, pasta, flour, etc. If we do have anything wheat based it’s organic and if there’s any sugar in something it’s organic cane sugar usually. No corn syrup or high fructose corn syrup. Basically, if we don’t know what’s on the ingredient list, we don’t eat it. The MIL was saying how she likes those rotisserie chickens from the store. We told her…ummmm, ok, but you can’t eat the skin. Of course, that’s the best part! The reason people are so addicted to them is because the seasoning they use has sugar in it. Pretty much everything American’s eat nowadays has sugar in it.

    #94907
    marions
    Moderator

    taylor….my motto for those being treated for cancer is: if it helps you and doesn’t hurt you why not try it.
    Everything seems to be moving along quite well. How is your MIL handling the current treatment?

    Hugs
    Marion

    #94906
    taylorjm
    Participant

    Well the MIL has been on chemo a few weeks. So far the only side effects is she’s tired for a couple days after. We got the dr’s signature and are signed up for medical marijuana. We have a lakehouse an hour north of us and the neighbor up there is a caregiver so we signed up with him. We are going to try the rick simpson oil treatment. The neighbor makes the oil himself so at least we know where it’s coming from. For the full treatment that’s recommended it will cost about $2500. So it’s one of those things that after you read about it, and know about it, do you take the chance and not try it? There’s really no negative effects except she might be sleepy the first couple weeks out of the 90 day treatment. If we don’t do it, we would always wonder if it would have helped. If we do it, and it doesn’t help, oh well, we tried, and are out $2500. If we were talking about $25,000 then that would be different. So I guess we’ll see!

    #94905
    gavin
    Moderator

    Great news Taylor, thanks for sharing! Fingers crossed for the good news to keep on rolling here.

    Gavin

    #94901
    middlesister1
    Moderator

    Taylor-

    What great news!! Gaining weight while on chemo is wonderful. So many posts are looking for help on how to keep from losing it. Tell you MIL that she can worry about weight when treatments are over.

    Best wishes for great success,
    Catherine

    #94904
    marions
    Moderator

    Taylor…this is good news all the way around. Please, please don’t have her worry about the weight. It will balance out. Perhaps much of what she gained is fluid, which in turn can be related to the chemotherapy. Also, make sure she drinks, drinks, drnks fluied to flush the chemo out of her system.

    Hugs
    Marion

    #94903
    taylorjm
    Participant

    Well so far the mother in law has had 2 chemo treatments and she’s not experiencing any side effects. She had some mild nausea but it went away quickly. The only thing that’s different with her is she’s sleeping 12 hours a night. Which basically means instead of her getting up a 5am, she’s getting up at 9am. So it’s not like she’s sleeping her day away. She’s not happy because she gained 7lbs in the last week, but she lost 14 lbs in the 3 weeks prior because of all the stress of dr appointments and not knowing what’s going on. So she’s worried she’s going to gain weight!

    #94902
    taylorjm
    Participant
    deadlift wrote:
    I thought i was pretty common to always start with gem/cis if it’s inoperable before moving on to trials. I know with the ag120 you had to fail primary treatment first. May as well get that out of the way.

    As to some being operable and others not. We’ve all been to high school. There are A students and D students. You never know what kind of surgeon you get. I’ve see seen that with my buddies wife and her surgical issues. She had her case presented to a team of doctors and nobody could touch it, then one doctors all “yah i can make that happen”

    All depends on how good they are sometimes.

    As to the oil and the cost. I’ve heard that it’s spendy. And insurance doesn’t cover it well etc. Though the oil can be more sleepy. My wife just smokes it old school from a bong. so depending on what she has sometimes it makes it harder for her to sleep cause it energizes her. Course she smoked off and on before cancer. The stuff I get for her is dirt cheap. Probably under 400$ for an oz, and lasts her a long time. Trick is to get the kind that keeps her low key. She’s said sour diesel makes her too energetic. She’s had good luck with purple haze and girl scout cookies.

    Good luck!

    Thanks. Yeah, I’ve read there are two different strains. The indica and the sativa. The indica is the one that is supposed to help with cancer and is more sedative. The sativa is the one that makes you hyper and gives you more of a “high”. I like your analogy about there being A students and D students. It’s very true.

    #94900
    positivity
    Participant

    Well said Marion! Please Taylor don’t allow a doctor to place a time table on a patient’s life. They may be speaking in general terms, and in reality they don’t know. One oncologist spoke statistically if patients who are similar to my mom’s case don’t get chemo they have about 6 months, but not the case, as a date cannot be placed on anyone. Yes, it does instill fear, disappointment, worry, and sorrow, but ultimately the patient chooses their treatment.

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