Remission!
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No, extrahepatic. In fact, the cancer surrounded the bile duct and was pinching it closed, so I got very jaundiced. The first step in treatment was an ERCP where they inserted a stent to open up the duct so the jaundice would clear. That was before the CC was confirmed.
Louise
Gemzar and Cisplatin. In 3 weeks time, I had one week with both chemicals, one week with only one of them, and one week with none. The first time I had chemo from July 2007 to Jan. 2008 (8 cycles) and the second series was fall 2008 for 6 cycles.
Diane,
My first series of chemo was supposed to shrink my tumor so that surgery was possible. But what the CT scan showed after nearly 6 months of chemo was that there was nothing to remove. The chemo had definitely shrunk the tumor to nothing! My doctor calls me an outlier (statistically, off the charts). Seems that no matter what they expected, it didn’t happen. I just keep thanking God and learning all I can about what I have and what the doctors recommend, and I have participated in planning my treatment by asking lots of questions. Each time that the oncologist presented alternate scenarios (we could do this or this), I made the choice. I was definitely my own advocate, calling when I noticed changes. So, hang on for the ride of your life! Remember, God is in control. You have the right to tell the doctors yes or no to any recommendation they make, or to let them make decisions for you if you don’t want to make a decision. And when you make a decision, don’t second-guess yourself!
Louise
Louise,
You are doing great. I hope you remain healthy. I am so happy that everything the foundation has been doing to get the word out is working. I love the idea of a budy system. This cancer is very scary. Best of luck.Diane,
I hope your tumor shrinks for surgery. I am in the same boat and keeping my fingers crossed for both of us. It is not rare for surgery to be ruled out at one point then later it is ok. The new chemo regimines do offer some hope. Lets think good thoughts for each other..surgery here we come.Kris
Oh, my goodness, Louise you are quite a story!!! The kind we love. We are so glad you did find us. I found this site January 13, 2006 and it was not that old at the time. There were like 100 members and look at us now. We hope your good news continues and I think we should call you Awesome Louise!!!
After a visit to my primary care physician on 4/17/09 with complaints of upper right abdominal pain and back pain she ordered some blood work and a sonogram of my liver. The sonogram showed several masses in my liver. She set up an appointment for me the next day with an oncologist and to have a CT scan of my liver. After his evaluation he also included a liver biopsy which confirmed that I had liver cancer. After a visit to MD Anderson Cancer Center in Houston, TX, I was diagnosed with cholangiocarcinoma. I am currently receiving 4 rounds of chemo and will travel back to MD Anderson at the end of June to see if the chemo has shrunk the tumors. If so, I may be able to have surgery to remove the right lobe of my liver. It is our hope and prayer that surgery will happen. I am excited to have found this site and look forward to reading everyone’s updates and messages.
Diane
My diagnosis of cancer was suspected in April 2007 and confirmed with an exploratory surgery on May 29, 2007. The pathology report called it cholangiocarcinoma. I have had jaundice, ERCP, jujenostomy, hysterectomy, metastasis, 2 series of chemotherapy, and one series of radiation therapy as well as stents and the port. I expereienced side effects from major nausea, diabetes, and fatigue to hospitallization for blood transfusions. One of my procedures was delayed because my platelet count was low. During the first few months afer diagnosis, I did quite a bit of internet search for information and never found your site. How long have you been here?
Since radiation ended April 2, 2009, I am delighted that I am no longer taking any medications! My oncologist sent me a flyer about the cholangiocarcinoma foundation and I received it TODAY! I have been paired up with a recently diagnosed cancer patient in a buddy system. I believe God has given me quite a story and I am williing to share it with anyone who asks. God is awesome!
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