April 21, 2010 at 5:40 pm #36613marionsModerator
Betsy….I also would like to chime in. Good luck on Monday.
MarionApril 21, 2010 at 6:03 am #36612gavinModerator
Good luck for Monday! I hope you get some good news here.
GavinApril 20, 2010 at 11:39 pm #36611lainyParticipant
Betsy, April 26th is going to be a banner day!!!April 20, 2010 at 11:35 pm #36610darlaParticipant
I will be waiting to hear good news on Monday, too!
DarlaApril 20, 2010 at 11:04 pm #36609
Tom and I wish you the very best. I really hope you have healed with no need for surgery. Anyway I have been reading your posts to him in order to scare him enough to really take it easy while they have this stent stretching his duct. He really doesn’t want to go through what you’ve been going through. I’m glad they take such good care of you at the Clinic. My sister-in-law spent 7 weeks there over the winter and ends up there once in awhile now but mainly just out-patient. We must be getting old because we get together and talk about all of our health issues and experiences with Drs. Unfortunately there’s always lots to talk about!! Take care and keep us informed. I’m looking forward to hearing good news from you on Mon.
MaryApril 20, 2010 at 8:18 pm #36608lalupesParticipant
Good Luck, Betsy!!!April 20, 2010 at 1:07 pm #36607
Thanks for thinking of me. I will find out next Monday if the hole has repaired itself. The last time I went, 4 weeks ago, the doctors were encouraged and said it was healing. Its been a struggle regaining my health. I was hospitalized 2 times recently – both due to an absess formed from bile leaking from the hole – which then got into my blood stream and I became septic. Oh my gosh. I’ve never been so sick or scared in my life. I’ll spare you the details unless you think it would be helpful. Anyway, for now, I’m feeling a little better – have 2 bags – one draining the absess and the other one draining bile. Just had my PICC line removed (Yeah!) and I’m onto oral antibiotics.
How are you?
BetsyApril 19, 2010 at 10:56 pm #36606
How are you doing? Has the tear repaired itself? I saw that you posted the other day. I’ve been thinking about you and hoping for the best.
MaryMarch 19, 2010 at 4:40 pm #36605devoncatParticipant
Let us know what happens. Hearing others experiences means we can offer more insight to the next person. Good luck on mending (without major surgery)
KrisMarch 19, 2010 at 12:27 pm #36604
Wow Betsy, it seems like you have no “good” choices as to what to do. I hope they can figure this out without causing you more problems and without major surgery. Keep in touch and take care. Best wishes, MaryMarch 18, 2010 at 5:22 pm #36603marionsModerator
Betsy….This is what I have learned re: bile ducts. There are the interlobular bile ducts, intrahepatic bile ducts, left and right hepatic ducts merge to form common hepatic duct, cystic duct (from gall bladder) forming common bile duct, pancreatic duct. Still don’t know how many there are.
Also Betsy, should you forget your password and in order to avoid the extra trouble of signing up as a member again please, contact Rick. He will re-set your password.
MarionMarch 18, 2010 at 12:42 pm #36602
Thanks for your quick responses. Yes, I am Betsy from Cleveland. The stricture is right at the point where the bile duct was sewn into my intestine – the hole is a little bit away from the stricture moving back towards my liver. I don’t believe the hole was casued by the dilatation. If I can recall correctly (I’ve had so many drugs, who can keep it straight!) the doctors have suspected a leak but haven’t been able to find it until now but that is starting to not make sense to me. So maybe it did happen with the dilatation. And yes, surgery would be a huge deal. My surgeon doesn’t even want to have to do it. I would have to be cut wide open again, some of the liver would have to be removed to get to the bile duct…I can’t even bear to think about it. After my resection I also had a tear and I did go on “TPN” (IV meds) for 2 weeks but still wound up with a stent. I did manage for 6 months without a stent and I thought I was out of the woods. By the way, how many bile ducts are there? I am down to 2.
BetsyMarch 18, 2010 at 10:41 am #36601
You are the “Betsy” from Cleveland right? Was the hole in your duct caused by them trying to dilate it with a balloon? I believe the last post I read of yours that was what you were having done. I’m very sorry for all of your troubles and hope you don’t have to go through more agony.When my husband had his dilatation, they mentioned that they could cause a “tear” and didn’t seem to make a big deal about it, just that he would have to have surgery to fix it. Sounds like it is a BIG deal. We are to the point ourselves that we don’t want them to go inside and do anything to him anymore. He has a stent in at present after being septic and in the hospital for 5 days after an ercp gone wrong. We just want them to take out the stent and leave him alone. Do no harm! I hope things go well for you. Keep in touch and take care of yourself. These infections really can drag you down! Take care, Mary
PS- As far as it repairing on it’s own, I doubt that it will, depending on where it’s located. Bile is so toxic that if there is any damage inside of the ducts it keeps the cells from repairing themselves. I think that is why my husband has rising tumor markers and cholangitis. They have taken so many tissue biopsies and done so much scoping I think his ducts just can’t repair themselves once the damage is done. They just scar.March 18, 2010 at 2:35 am #36600lainyParticipant
Betsy, I am so sorry to hear about this. Where exactly is the hole? I ask because Teddy developed a small hole at the resection from a Whipple and they really did not want to do more surgery on him so put him in rehab for 3 weeks on NOTHING but an IV (he called it his candy bag) and the hole did heal on its own. It would depend on where it is and how big it is.March 18, 2010 at 1:18 am #3327
I’ve been having major problems with one bile duct. I have a stent in place to repair a stricture but I now also have a tiny hole in that same bile duct. Interventional Radiology is trying to resolve this dual problem with one stent and two separate drainage tubes and bags…one is located at the stricture and the other is by the hole. If the hole doesn’t repair by itself, I’m heading into major surgery again. I’ve already made 3 trips to hospital – the last one was a mess – 8 days in the hospital (2 of which were in ICU) due to sepsis. Anyone have information about bile duct holes repairing on their own?
p.s. I’m not a new member but I can’t remember my user name so I started over.
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