Discussion Board Forums Supportive, Palliative & Hospice Care Response to Alla’s posting

Viewing 15 posts - 31 through 45 (of 66 total)
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  • #65445
    tryingtohelp
    Member

    Thank you, all.
    Looks like everybody in agreement about TPN. Interesting enough, I prepared his TPN tonight and we tried to flush his Picc line – didn’t work. So tonight decision was made for me, at least for now – divine intervention? Interesting how it worked out for tonight, isn’t it?
    I will talk to nurse tomorrow. Thanks, Alla

    #65444
    marions
    Moderator

    Alla….this is what I have come to understand: when our loved ones rely on us making a decision they are unable to make for themselves, they know that we do it on their behalf with their best interest at heart.
    Speaking with a nurse and/or the doctor will help you understand. This discussion will clarify Marty’s current symptoms, what it means to have these symptoms, and what possibly can be prevented with certain intervention.
    A million hugs and tons of love,
    Marion

    #65443
    lainy
    Participant

    Alla, that is such a difficult question, I want to refer you back to Marion’s post on this thread of Oct 9th. I would also ask the Hospice Nurse what she thinks and put those 2 things together with seeing how he is tomorrow. I know this will be the hardest decision you have to make but there is no right or wrong. If you pushed me against the wall and demanded an answer, after going through what I did with Teddy, my own personal self would not prolong anything. Again that is my own opinion. I used to tell my kids when making a big decision to write a list of pros and cons and see which one outweighs the other. They tell me that helped in making decisions. Well, Alla, thats the best I can do. What ever you decide will be the right decision. Be strong.

    #65442
    magic
    Participant

    Hi Alla,
    that was great that you had that time,as I said you get these windows here and there and can make the most of them.Clearly he was very happy to see his son.
    I think you should stop the TPN,I dont think it has a place,that is my nurse opinion and my carer experience opinion.I am happy you have family support to help you through this.

    Take care Janet

    #65441
    tryingtohelp
    Member

    All about the same. Surprisingly he was more alert today – stayed awake for about 2 hours once, talked – mostly nonsense, but would answer simple questions. Sounded mostly clear as well. Yesterday he was happy to see his son – smiled big and gave him big hug, then acknowledged me and gave me hug. Even puckered up his lips for a kiss! Of course it was all mixed with some other moments of confusion, but at least had few good moments. He later thanked his son for coming.
    Now my biggest dilemma is TPN. His son and his brother think we should stop it. I’m having hard time with it. Am I prolonging his suffering? Will he ever regain clear mind?
    Any input is welcome! Sincerely, Alla

    #65440
    tryingtohelp
    Member

    Thank you, Lainy, for sharing a beautiful poem. You are very talented!

    #65439
    lainy
    Participant

    Alla, that was such a heartfelt gesture. Just shows that he is aware what is happening, you will always cherish that one. This is that time when we make these moments to cherish, I still cherish many like that. I remember being in the kitchen and Teddy came ambling in without the walker. I said, “where is the walker? If you fall we will really have problems”. He answered with outstretched arms, “I just wanted to dance with you” and he started singing our song and dancing with me. Bittersweet I know but oh how those moments get us threw later. If you don’t mind I want to share a poem with you that I wrote about 1 week prior to Teddy getting his Peace.

    SENSITIVE SENSITIVE

    Time is growing closer, I can see it in his eyes,
    Time is growing closer, but we’ll have no sad ‘goodbyes’.
    Memories abound from our precious moments spent,
    To God it is, I’m sending, the most “precious” package sent.

    These last few months of knowing, we’ve made a honeymoon,
    In my mind a vision of an eternal, beautiful afternoon.
    He is still my charming Prince, who taught me how to love,
    And someday we’ll be together, in Heaven up above.

    I will see him riding stars, I will see him in the moon,
    And someday you will see us dancing to our favorite tune.
    He will touch my face so gently, like he’s known to do,
    It’s not goodbye forever, with memories bad or few.

    All our love, my sweet one, is ours to hold so tight,
    Until once again together on a mystical, magic night,
    We will be again united to celebrate our dance around the sun,
    And know that our eternity together, has only just begun.

    #65438
    tryingtohelp
    Member

    Thank you for the tip. Still waiting… Now Marty is just mumbling, can’t even tell what he is saying. Or not talking. But it touched me that he put his head on my shoulder when I was helping him to go to the bathroom…

    #65437
    lainy
    Participant

    Alla, we have had 2 good remedies for hiccups on our site. Teddy had them non stop for months after his Whipple and finally a Pharmacist recommended Brioske (sp). Its like a ground alka seltzer that you dissolve in water. Teddy took it once and the hiccups left and never came back. You can get it at CVS or Walgreens and it comes in a blue bottle. He also used it to settle his stomach when needed. The other suggestion is a teaspoon of sugar. I hope his son has arrived. Be strong.

    #65436
    marions
    Moderator

    Alla…yes, my husband also had bleeding problems. I am glad to know that your friend is by your side and hope for quick arrival of Marty’s son.
    My heart is with you,
    Hugs and love,
    Marion

    #65435
    tryingtohelp
    Member

    Thank you all. Marion, does it mean your husband had bleeding problem as well? Mine is still confused, sleeping a lot, lots of hiccups. Still waiting for his son to arrive. I think I’m handling second day a little better, with the help of my friend. I’ll keep you posted. Sincerely, Alla

    #65434
    marions
    Moderator

    Sensitive
    Alla….I hope that his son has arrived. At this point I switched over to dark blankets, sheets and towels.
    May strength and love continue to surround you in this difficult time.
    Hugs,
    Marion

    #65433
    darla
    Participant

    Alla,

    I am so sorry to hear of what you and your family are going through. Many of us have been through the same and know how you are feeling. I am glad to hear his son will be there to help and support you.

    Many thoughts and prayers coming your way.

    Take care.

    Love & Hugs,
    Darla

    #65432
    magic
    Participant

    I think you may get a window of clarity here and there and you can take advantage of that when it occurs to chat.
    Pretty awful symptom to deal with ,the bleeding,even though its part of the process,it makes us panic a bit to see it.
    I think he is declining quite quickly now so I am glad his son is on his way and if there are other close friends and family,gather them around.
    Janet

    #65431
    lainy
    Participant

    Alla, Morning, I got up early and saw your post. When is his son getting in? I am so glad that you will have him there with all of you. I hope you got some rest, yesterday was a bear for you! I will be watching for your updates and be strong!

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