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- This topic has 13 replies, 8 voices, and was last updated 12 years, 11 months ago by pamela.
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January 20, 2012 at 3:52 am #56690pamelaSpectator
Dear Sue,
I don’t think you were being weak. I just think you are scared. Scared of the unknown. Scared to be the strong one. Scared to be alone. I would feel exactly the same if I were in your shoes. You are strong and can handle things. We are all here to help you along. If you fall, we will pick you up. Your post today sounds way more positive. Way to go girl. I knew you had it in you!
Prayers to you and Darrell.Love, -Pam
January 20, 2012 at 12:22 am #56689darlaSpectatorSue,
Just whine all you want or need to. We are all here to listen and do understand. My husband was never sick either. We were together almost 24/7 for over 40 year’s. He only suffered with this disease for 2 months, so it took me a long to time wrap my mind around what actually happened. This site was a god send for me at a time when I was really suffering.
Just take everyday as it comes and make the most of it. You will be amazed at how strong you can be when you have to be. Remember that we are all here for you when you need to vent or be comforted. None of this is easy, but you will be OK. Thinking of you both and hoping for the best. Take care.
Love & Hugs,
DarlaJanuary 19, 2012 at 7:21 pm #56688kris00jSpectatorSue:
I’m sorry to hear your husband has had growth during his break. That is scary. Did they say why they are continuing the same cocktail? Did it work well when he was getting chemo?
My chemo cocktail(s) were: systemically; Gemcitabine (9x) and Oxaliplatin (6x): and thru the pump, FUDR (3x). I don’t know what his cocktail is, but maybe you can ask the oncologist about other chemo options?
I haven’t had chemo since November 14, 2011 and that was Gemzar only. Since then my tumor has shrunk over .5cm total. I had not had a scan since Oct. 26th so I am not sure just how much was after chemo was discontinued, but my scan from late Nov. was .5cm smaller in one direction and the scan from Dec. 30 was .5cm smaller in the other direction.
So YES chemo does continue to work sometimes. I figure it should since I still have neuropathy in my feet! It’s only fair that if I still have side effects, it should still be working to kill the tumor.
As for whining: you are entitled to get upset and cry: just stay strong for him. Do what you can to keep him thinking positive. It’s hard, but it’s necessary.
And I’ve noticed that for some reason a large number of us have had healthy lives. I only went to the dr. for my yearly “female” stuff before this all started. I’ve seen more drs. in the past year than I have my whole life. And I’ve definitely spent more time in the hospital than I ever have before.
KrisJanuary 19, 2012 at 7:06 pm #56687lainySpectatorDear Sue, no need to apologize for anything, we all have our ‘pity parties’ and they come well deserved. What is important is to have the party (ice cream and cake would be nice too) and then gather thoughts and strength and march forward again. You are doing just fine. Teddy was NEVER sick in his life either. Ya, know, it’s not like CC is a wart that can be removed, it is much uglier! You are allowed to whine once in a while but try to put making loving Memories out there in front of the worry. It really does help when you live a ‘honeymoon’ to take the place of the nightmare. I know, we did it and I don’t regret one moment.
January 19, 2012 at 6:19 pm #56686sueayersMemberThank you all I am sorry I sounded so weak yesterday it is just so hard to take in. We have been together over 30 years and I can count on one hand the number of times he has been sick with anything. He doesn’t even get a cold or the flu. He had a blocked artery when he was 40 that they put in 2 stents and he went for a 6 week check and never went back. He is just never sick which makes it so hard. I have had a long list of medical problems and he has always taken care of me. But I know I have to step up to the plate and stop the poor me stuff and concentrate on keeping him healthy and with me. Sometimes a person needs a slight kick in the pants so thank you all. Keep him in your prayers and I will stop whining and concentrate on what needs to be done
January 19, 2012 at 6:56 am #56685marionsModeratorSue……I am so sorry to hear the news. As the others have said it is best not to second guess because; the answer is unknown. Know that a tidal wave of good wishes is heading yours and Darrell’s way; a tidal wave big enough to shrink these darn tumors into obscurity.
Hugs
MarionJanuary 19, 2012 at 5:52 am #56684wallsm1SpectatorSue,
Sorry to hear of your husband’s tumor growth. It is way too easy to second guess every decision you make when dealing with this cancer. I will keep you in my prayers.
Best wishes!
Susie
January 19, 2012 at 4:59 am #56683pamelaSpectatorSue,
I am sorry to hear that Darrell has more tumors. It is a good thing that the doctor thinks chemo will help. I think you should look to the future instead of dwelling on could’ve and should’ve. The past is gone. Look to the future and think positive thoughts. We are all here for you. Dig deep and find your inner strength for yourself and Darrell. I never would’ve believed I could handle my daughter having cancer, but I made up my mind to never give up hope and make her life as wonderful as I can. I want you to try and do the same. We’re in this together, Sue. Take care my friend.
Love, -Pam
January 18, 2012 at 9:31 pm #56682lainySpectatorSue, we just don’t know! Some people can even take a few months break with no new growth. We wish we had the answers. The only thing and the best thing you can do for him is to garner all the strength you can as he is going to draw his strength from you. I know it’s easier said than done but you really have to try to stay strong for him. He cannot possibly fight what he has to if he is worried about you. I am curious if the ONC said why he is continuing the same chemo. I am sure it didn’t mean anything just curious. You never know how strong you are until “strong” is the only choice you have!
January 18, 2012 at 9:20 pm #56681peggypMemberHi Sue,
Don’t get discouraged; I know that every time that my husband has had a chemo holiday his scans usually show more growth. If your husband is going back on the same chemo, it must have been doing some good or else his oncologist would suggest something else. John is on his third chemo cocktail. He was diagnosed Stage IV ICC in Aug. ’08. but he continues to fight the fight. That’s why we call this a roller coaster ride, because you get thrown so many curves. Sending prayers and lots of positive thoughts your way, PeggyP
January 18, 2012 at 2:41 am #56680pamelaSpectatorDear Sue,
I will pray very hard that your husband’s tumors are shrinking. It seems as though you have had to wait forever. I know how hard it is to wait for results. Like a sick feeling in your stomach every time you think about it. Please let us know the results. Hoping for the best.
Love, -Pam
January 18, 2012 at 12:26 am #56679lainySpectatorSending many prayers your way for a good report tomorrow and yes, chemo is like the Ever Ready Rabbit, it gives a lickin and keeps on tickin!
January 18, 2012 at 12:12 am #56678marionsModeratorSue….absolutely, we have seen continued shrinkage after cessation of treatment. I wish the same good news for you and your husband.
A tidal wave of good wishes are heading the way of AlbertaMarion
January 18, 2012 at 12:05 am #6216sueayersMemberTomorrow at 8:50 we finally get the results from
My husbands CT scan after his 2 month break from chemo
Has anyone ever had shrinkage continue during a break from chemo
I’m very scared to hear on 1/2 me and hopefull and excited on the other if
That makes sense.
Please pray for him tonight
Thank you all -
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