Scalp recurrence of cholangiocarcinoma after curative hepatectomy: A report of t
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Hi Debbie and Mary,
Thanks for your kind words and as always I am very glad to be of help. And yes, you both are so right in what you say about keeping on top of any changes what so ever and reporting that to your doctors or oncs as soon as possible. Making lists of thing to mention to my dads team always helped me in meetings with them no matter how small or insignificant my dad thought they were! The peace of mind aspect you talk of Mary is very important I would argue.
Yes the mets to the scalp I had not heard of before and seems very rare indeed. Only finding 2 patients for their pubmed piece could show the rarity of these mets to the scalp. But, you are both right in that everyone needs to be vigilant about everything to do with CC!
I hope you both enjoyed the New Years and I wish you all the best for 2018!
Hugs,
Gavin
Mary,
that’s take away from the article as well. Although it’s highly unlikely that we’ll get any of these very rare CC mets, it’s important to be vigilant and have things checked out.
I am also grateful to Gavin for all the research provided to us !!
Debbie
Thank you Gavin for all the work you do to search the medical literature.
When I looked at this article, my initial reaction was “Yikes, you can get mets in your scalp?” But this is of course extremely rare, in fact so very rare that the authors were able to get a publication out of it. There are other articles I have seen, some of which Gavin has posted, that also describe cases of a patient with an extremely unusual location of CCA mets.
For me, the lesson in this is that with CCA, as a patient I must be very attentive to what is going on with my body. Any bothersome pain, new symptom or other factor that seems out of place should be on my list of questions when I see my doctors. Chances are excellent that I will NOT end up starring in some doctor’s medical journal article as an unusual case, but we can all have better peace of mind by asking questions to our medical providers about any concerns that come up.
Happy New Year everyone!
Regards, Mary
Scalp recurrence of cholangiocarcinoma after curative hepatectomy: A report of two cases.
https://www.ncbi.nlm.nih.gov/pubmed/29285386
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