Seeking Advice

Discussion Board Forums Introductions! Seeking Advice

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  • #97706
    bglass
    Moderator

    Hi Srector60,

    Welcome to our community.  I am so sorry to hear about your nephew’s wife’s diagnosis and the ordeal she has been through at her young age with her metastases and treatments.

    From what you described, she is now in hospice care, which suggests her treatment is focused on preserving her quality of life.  One important aspect of this is that the patient is able to communicate what she needs.  For example, there are different ways to treat pain, so if one is not working, an alternative should be quickly sought.  Another concern I have heard among caregivers is that some hospice arrangements place a lot of responsibility on family members to administer care, so it is important to be sure that is working well and that caregivers are not left overwhelmed.

    You asked about options for restarting treatment or joining a clinical trial.  This is a question that is best addressed to doctors.  If a patient strongly wants to pursue additional treatments despite likely side effects, that is a personal choice that his or her doctors would take into consideration.  Starting hospice care where treatment is focused on quality of life can be, for some patients, a choice that can prolong survival.

    You and your family are providing such heartfelt support.  I hope your nephew’s wife feels better with the care she is receiving.  Please stay in touch.

    Regards, Mary

     

    #97699
    Shortcanuck
    Participant

    I’m so sorry about your sister-in-law. The recurring theme in discussions about this cancer, is that things move very quickly. On Halloween, it will be exactly 1 year since my husband’s diagnosis. It will also be 3 months since he died. Hopefully she will be a bit strong enough to partying a trial. The main goal should be giving comfort to her and her family.

     

    I hope your treatments for your cancer cancer is a success.

     

    ❤️ From Canada

    #97697
    Srector60
    Participant

    My nephew’s wife who is 39 was diagnosed February 2018. No symptoms before but her leg starting hurting. She thought she pulled a muscle. Her leg started locking and made it difficult to walk. She went to the ER and they thought it was kidney related. Performed an ultrasound and CT. Er doctor told her you have cancer and need to call your doctor. That was it. After processing this information and more tests she was diagnosed with a large mass in her liver and lesions on her hip, sternum and spine; therefore it was inoperable. She has been on two kinds of chemo, radiation and has had at least 3 operations. The operation was on her spine to alleviate pain, a large mass on her thigh had eaten away the bone on her thigh which broke when they operated. Additional operations for masses on her knee and arm. The arm was weakened but not broken but is still fragile even with the pin in place. After all these procedures her hips started hurting and the lesions are compromising the bones. The chemo has not worked so they decided to stop it. They decided not to operate on her hips but they did radiation in hopes to stop the growth. She is now at home, she cannot walk and they have hospice coming in. This cancer just seems to grow overnight. She has also been through blood clots on her lungs and is on blood thinner. I was diagnosed with Stage 3 colon cancer back in 2015. I went through 9 rounds of chemo. It was a tough road but so far all my tests are clean. My question is we have gotten 2 opinions for her but should I pursue any other avenues? They told her she is not strong enough for a clinical trials. I know when I had my diagnosis discussion boards were an immense help to me. They have 11 year old twins and it just breaks my heart.

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