Shock and augh!
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Dear Rob, welcome to our wonderful family where you will find the most courageous and brave people from all over the world. Say, don’t get so comfortable about dying…you could be in for a surprise! May I ask where you are being treated and are these Doctors with CC experience? We are BIG believers in 2nd and 3rd opinions, we don’t listen to statistics and we have learned that knowledge is powerful. Rob, there is always hope! We have members who were given months and its been years. When did you have your PET? Answers can be had the next day with most Doctors. Honestly once your ONC knows exactly what is going on and a treatment plan kicks in your fright will turn to fight, it never fails. Please keep us updated and wishing you the very best!
Hi, my name is Robert and I have been tentativley diagnosed with peripheral interhepatic cholangiocarcinoma and I am still somewhat in shock. My tumor is very large (14 cm x 10.9 c.m. x 12 c.m.). I had not had any problems until a blood test a little over a year ago said I had increased liver function. A follow up 6 months later confirmed this and a battery of tests was conducted to see if I had juandice, HEP etc. They also did an ultrasound of the liver and found nothing remarkable. How this thing grew so fast and so large in such a short period of time I will never know. At 42 I am comfortable with the thought of dying accept for the fact that I have two small children (8, 11) which I can not imagine growing up without me.
I’ve done some homework and it appears my TNM stage appears to be T-3 N-1 M-0 do I have hope? I have a biopsy this week that will hopefully tell the tale for sure but my symptoms do all lineup with those of cholangiocarcinoma and my surgeons are pretty sure. The question they need to answer is if it is resectable. Two lymphnodes in my chest appear to be affect (still waiting on PET results for this) does this mean it’s getting ready to spread?
Any help or words of encouragement would be greatly apprecitated at this time.
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