August 19, 2008 at 11:42 am #21015
Thanks for letting us know how things are going. Your family will continue to be in my prayers.
KrisAugust 19, 2008 at 4:05 am #21014daddysgirl-2Member
Congratulations, Belle, on becoming a grandmother! Such a bittersweet time, I’m sure. My thoughts and prayers are with you and your family.
JoleneAugust 19, 2008 at 3:07 am #21013jeffgMember
Thanks for the update. Our prayers and thoughts are with you all. I’m sure the hydration has kept the pain medication working fairly well.
Jeff G.August 19, 2008 at 2:18 am #21016belleParticipant
I guess another short update is in order. Things have been very hectic on my end and although I check up on the site from time to time, I don’t post so often, so thank you to all of you for your interest and heart. My sister is slowly, ebbing. While my parents have elected to continue hydrating her (emotional as well as religious concerns) she has not eaten or drank (gr??) in 4-5 weeks. She was able to go off the bed until this week, but today she tried to go on her own to the washroom and fell. The drugs for the nausea are only partially working as her tumors are now causing much pressure in the stomach and cause sort of projectile vomitting. She sleeps much and is quite listless. A friend of hers from NY came to visit her and she smiled for the first time in weeks. So my dear friends, it is just time…. But on a happier note, I became a grandma this week. My sister was so looking forward to becoming a great aunt…She knows of her little nephew but couldn’t join us for the celebrations. We’ll keep in touch, BelleAugust 18, 2008 at 5:43 pm #21012wabalsMember
You are in my prayers, as is your family.August 18, 2008 at 2:01 pm #21011
I have been thinking so much about you and your sister. Please let us know how you are doing.
KrisJuly 24, 2008 at 7:33 pm #21010jcleggMember
It does break my heart to read this about your sister. We are with you in spirit. I do hope that God wraps his loving arms around your family and holds you tight.
Joyce CJuly 24, 2008 at 12:57 am #21009sophieMember
I am heartbroken for the grief your family shares because of your sister’s cancer. May God wrap his arms around all of you and give you some comfort. I pray that your sister’s suffering eases.
SophieJuly 23, 2008 at 5:07 pm #21008belleParticipant
Thank you to all of you who responded to my plaintive cry. Brenda, the reason that they are continuing to hydrate her is simply because that’s what they were doing until now. Making another decision to stop hydration is another very big step (which is under consideration) but we’ll see. The palliative care team will do whatever the patient and family wants which is a real comfort. I have only the best to say about our experience with the hospice care drs. and nurses. Once again, thank you and i’ll try to keep in touch. BelleJuly 23, 2008 at 5:03 pm #21007chrissy23Participant
You are so strong! I hope you know this. Sometimes, coming on this site makes me feel soo sad that I just want to crawl up in a ball and leave this awful place. We as caregivers do as much as we can but it kills me to not be able to take the pain away. Now that we are dealing with a recurrence, I am scared to be at this place one day. I don’t want chucks to suffer this way. It truly breaks my heart. I will pray for your sister and family. Still searching for the cure!
ChristinaJuly 23, 2008 at 1:28 pm #21006karenParticipant
Heartfelt prayers for your sister, you and your parents. Life can be so painful at times. Peace to you and your family.
KarenJuly 23, 2008 at 6:50 am #21005
I am sorry your sister and family is going through this and has to make those hard decisions. I pray that she is made as comfortable as possible. Please come in here as often as needed for support.
KrisJuly 23, 2008 at 6:37 am #21004marionsModerator
Belle, my heart goes out to your sister, you and your entire family. the vomiting can be relentless and can cause the throat to be very sore. I am sure that Hospice it aware of this and will take put in action anything possible for your sister to make her comfortable.
Sending all my love
MarionJuly 23, 2008 at 4:24 am #21003tiapattyMember
The anger leaves me at a loss, it’s the only thing I don’t have a response for, I just don’t know what to do or say, I mean, anyone who gets stuck with this disease has a right to be angry. I am reminded of something I saw on a church wall:
O all ye that pass by the way, attend, and see if there be any sorrow like to my sorrow. -Lamentations 1:12
Yes, all cancer is bad, but I think most people with this cancer would gladly trade it for almost any other.
My mom is also in hospice care at home, she is somewhat coherent and she told me the other day that she wants out of this whole deal and I had to tell her I knew it was a raw deal but I couldn’t do anything about it.
She perked up today but is also currently angry and told us to leave her alone. She keeps going back and forth emotionally and it’s hard for those who surround her to make the adjustment, especially her grandkids.
Now I am mad at myself and her because I wish I had pushed her to eat more healthy things, both before and after her diagnosis, since I think it would have given her more time. She has very poor eating habits, she thinks coffeecake is a food group, and she pushed away healthy stuff we were putting in front of her. If I were the sick one, she would want me to eat the good stuff but she is the boss…and stubborn as they come.
I hope your sister goes peacefully, she is lucky that she is not angry and alone. Please know, also, that you are not alone, that strangers who wouldn’t recognize you on the street care more than you know.
PattyJuly 23, 2008 at 3:02 am #21002bbfransonParticipant
I’m sorry, but why are they hydrating her? Isn’t one of the points of being with hospice is that you don’t have to do anything that would prolong suffering? It just seems………….. I don’t know. I really don’t know, but my heart hurts for you and your family. You’re in our prayers.
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