Discussion Board Forums General Discussion Sleepless nights

Viewing 13 posts - 1 through 13 (of 13 total)
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  • #27003
    darla
    Participant

    Kristin,

    We are on the east side of Lake Winnebago. This is a beautiful area, but the winters have been brutal the past 2 years.

    Darla

    #27002
    kristin
    Member

    Darla–

    Plymouth, good heavens! Our cottage is on Forest Lake, next to Mauthe Lake! You are sooooo lucky to live year round in such a beautiful area!

    Kristin

    #27001
    darla
    Participant

    Rose,

    It is rather interesting that so many of us are from Wisconsin. Something to think about. I will be hoping for the best for you with the scheduled surgery.

    Kristin,

    We have a lot in common. I’m originally from Sheboygan, now live in Plymouth & also have ties to Milwaukee, Madison & a cottage north of Fond du Lac. Small world, isn’t it?

    Darla

    #27000
    devoncat
    Member

    Rose May,
    I am sorry, I cant remember…did you get stents? If not, are they considering them?

    I think my bili numbers lowered (and I got some relief) if I drank LOADS of water. I drank so much, my pee was actually almost clear when it was tea color before. I guess I flushed some of it out.

    Kris

    #26999
    magic
    Member

    Hey Im from Australia but I hope your numbers improve before the 16th

    Janet

    #26998
    rose-may
    Member

    Interesting how many people there are from Wisconsin on this board….what’s up with that?

    I am supposedly scheduled for surgery on March 16 but that was contingent on getting my bilirubin levels down and being in good health to undergo a major surgery. Meanwhile I am shedding pounds, not absorbing nutrients from my food, have made very little progress in getting bilirubin levels down and feeling worse by the day, so don’t know what;s going to happen.

    #26997
    magic
    Member

    Rose may when is the surgery on?
    kind regards Janet

    #26996
    devoncat
    Member

    I took lukewarm baths in baking soda. It also helped.. Hope you can get some relief before your surgery.

    Kris

    #26995
    kristin
    Member

    A friend who’s an aromatherapist suggested mixing a LOT of peppermint essential oil into body lotion and coating myself in that several times a day. That did give me enough relief to get me through a couple of weeks until my first surgery (and I smelled really nice…)

    Hope this helps! (And by the way, I’m a transplanted Wisconsinite myself– grew up in Milwaukee, went to college in Madison, and still spend part of every summer at our cottage near Fond du Lac!)

    Wishing you all the best–

    Kristin

    #26994
    lainy
    Member

    Hi Rose, Sarna is an over the counter cream you can get at Walgreen’s or CVS.
    It’s very strong so you really can’t use it more than a couple of weeks. Also Teddy found ice bags helped. I am not a doctor but I don’t understand why they wouldn’t check on that stent. Your comfort is paramount! Many have had their stents fixed and still had surgery. Good luck fellow Wisconite!

    #26993
    rose-may
    Member

    I had the stent placed about 2 weeks ago. They are hoping to do surgery in mid-March and don’t seem to want to go back in to replace the stent or attempt an external stent for fear of creating complications that set the operation back. I don’t have another appt until Tuesday and it seems I’m just stuck coping with this for now.

    Is Sarna a cream or a drug?

    By the way, I really enjoy your weblog……..Its helpful to have someone else who walks by faith to share the journey with…even if it’s just online.

    #26992
    lisa
    Member

    Rose,
    I did right before I was first diagnosed. Lainy recommends Sarna for the itching. I do think you should see your doctor ASAP about the itching so they can get your bilirubin down and relieve your itching. I know, it’s almost unbearable! I had stents put in that relieved the itching within a couple of days.

    #2069
    rose-may
    Member

    What do you all do with your night hours?

    My sleep schedule is completely whacked at this point. The itching is so intense that I give up even trying to lay in bed. Thank god I get some relief from it during the daylight hours but then I spend those sleeping sleeping sleeping.

    But the night hours get really long. Around 11:00PM, 6:00 is far far away. I find I can’t really read becuase of the itching, so I try to take hot baths for relief, do housework, surf the internet, even do some cooking. But even so there are plenty of empty hours to fill.

    Anyone else dealing with this?

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