October 1, 2013 at 7:32 pm #75474marionsModerator
January…like Pat Summit’s advice in its simplicity. Glad to hear that your daughter has resumed an active and fulfilling life and Mom is able to relax a bit also. As you must have noticed, this board is filled with “pre-scan” anxieties” postings hence, the above mentioned advice fits right in. Know that we, as a special group of patients and caregivers are right by your side.
So glad to see that one particular posting prompted you to engage with us freely.
MarionOctober 1, 2013 at 1:23 pm #75473januaryMember
Thanks for the welcome. I’ve been following the site for months, and have got much from it, but when someone specifically asked for a recommendation on Sloan, I felt compelled to respond.
I’m doing better because my daughter is doing better. She was a newlywed when she got sick and she and her husband were away from each other for months while she was here in NYC for treatment. She has returned home and has resumed her happy, busy life. The challenge now is waiting for the next scan and dealing with the fears and anxieties that entails.
I saw a Pat Summit documentary, and she recommended: “Left foot, right foot, breathe.” Good advice.
-JanuaryOctober 1, 2013 at 6:48 am #75472marionsModerator
January…welcome to our site and thank you for your kindness of sharing the experience at Sloan with us. From what we have seen on this board, the majority of patients or caregivers never have heard of this cancer let alone know how to pronounce it. The average age of patients with this disease is 60 years however; we continue to see many younger patients. I hope that your daughter has recovered well from her surgery and that Mom is doing fine as well.
MarionOctober 1, 2013 at 1:50 am #75471lainyMember
Dear January, I cannot imagine my child, yes child even in the 20’s to go through this CC nightmare. How we hate to see something like this happen and we feel so helpless. Have they said anything about what will be required like chemo or anything? How is her recovery going? SK is one of our favorites.
Wishing your daughter a speedy recovery and please keep us updated on her progress as we truly care.September 30, 2013 at 6:30 pm #75470januaryMember
As sad as I am that we had to be there, we had a truly outstanding experience at Sloan. My 29 year old daughter had a liver resection and Whipple procedure at Sloan, performed brilliantly by Dr. Peter Kingham, followed by 4 months of GEM/CIS with Dr. Eileen O’Reilly. Dr. O’Reilly is so supportive and patient. She took the time to really know my daughter and listened so carefully. I could never fully express how grateful we are to both doctors, their staffs, and Sloan Kettering in general. I had never heard of cholangiocarcinoma before my daughter was diagnosed, and going through this with your child as the patient is beyond comprehension. Sloan did a tremendous job of explaining every step of the way and helped us to make the most of an unimaginable situation. I couldn’t recommend Sloan more highly.September 10, 2013 at 7:14 am #75469mcwgoatMember
I am currently being treated at Sloan. My medical oncologist is Dr. Maeve Lowery and I love her. She’s very open and honest in all our conversations and she gives you all the time you need to talk and ask questions.
MarySeptember 10, 2013 at 3:12 am #75468lainyMember
Dear Daisy, welcome back and so glad your Mom is recuperating, it does take some time. I have not been to SK but we have a few who have so I will take a step aside and let them come on to extol the virtues of their ONCs at SK. Glad you are home again!September 10, 2013 at 2:52 am #8880daisyParticipant
My mom had surgery in St. Louis at Barnes Jewish Memorial. Dr. Chapman did a liver resection and now we are backin CT and we are heading to Sloan Kettering for a consult with an oncologist there. I was wondering if anyone out there has any experience good or bad with any oncologists at Sloan?
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