SO EXCITED

Viewing 15 posts - 1 through 15 (of 18 total)
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  • #93810
    gavin
    Moderator

    I’m sure that you will all have a great time!! Looking forward to next month and will watch the conference from over here online.

    Cyberhugs coming all of your way!

    Gavin

    #93809
    lainy
    Member

    YEA! Can’t wait to mete h you, Pat. Safe travel to each and everyone.

    #93808
    marions
    Moderator

    Fantastic….can’t wait for the hugs.

    Marion

    #93807
    hercules
    Moderator

    Hello all, well I have booked a flight and a room and registered so I guess it is on… I will get to meet all of you who I have only known by the internet so I will be there in the flesh to prove I am not just an internet mirage or something. I want to hug everyone there who has made this site what it is. I will see you all in Salt Lake, I arrive the 31st so I should be there for all the fun. see you then, Pat

    #93806
    lainy
    Member

    Hey, everyone, I will be the short older lady with the white hair. And at 5′ short I will be with a man who is 6′. The ODD couple!

    #93805
    mvpratt
    Member

    Thanks guys …. i am so excited to meet you all. I feel like a lone warrior sometimes down here in the south. It will be fun to finally get to hang out and hear your stories.

    See you soon!

    #93804
    karend
    Participant

    I’m so excited that I finally get to meet you Lainy! I remember being in Arizona for the foundation one year (maybe 2012?) and we missed each other, so I can’t wait to give you a hug in SLC. :-)

    Gavin- Next year !!! and Michelle, I can’t wait to see you as well!!!

    Karen

    #93803
    lainy
    Member

    Thank you so much, Maiki. We will count on meeting you at next year’s conference!

    #93802
    maikki
    Member

    Enjoy! I am so disappointed that I will miss it, but I will be there next year for sure. For this year, however, I will be watching via the internet! Warm regards and safe travels to all,

    Maikki

    #93801
    gavin
    Moderator

    Hopefully next year Lainy. But, it seems that I say that every year! Honestly am not dodging getting over there but you all know how things are here for me.

    A ton of videos on the youtube channel as well. I like this one from last years conference a lot. It has loads of you all in it too! :)

    https://www.youtube.com/watch?v=fe-kD2VQ2Ac

    Hugs to all,

    Gavin

    #93800
    lainy
    Member

    Hi Michelle, we will be meeting up for sure! So excited I wish is was this weekend! You are a super hero and I have a feeling you will always be a great example for others fighting this monster fight!
    See you soon!

    #93799
    mvpratt
    Member

    I too am very excited to be attending the conference. I attended with my best friend/coworker last year and I have to say the event changed my life. The ability to meet and talk with so many other people who were going through the same thing was mind blowing.. In addition it was at that conference that I learned how survivorship works…. as you know I thought I could not call myself a survivor because I hadn’t beaten this beast yet…. almost as I went 4 years without a recurrence but as I talked with people I learned that I had been beating this beast year after year.. Nothing hold more true this year.

    So I am super excited to be bringing my husband, meet all of my Facebook and discussion board friends, and learn so many new things to bring back to my area. i feel my part of the country is a bit under represented so I feel a bit of responsibility to bring the info back and help those in this area have knowledge and hope about this disease.

    I also want to thank everyone for continued support I have been absent from the discussion board due to a difficult few months. I had started a clinical trial that just wasn’t for me. Hopefully it killed away the metastatic cells that were floating around but I lost quite a bit of vision and had horrific joint pain. Unfortunately this made me less available and very focused on reversing. I have since left the trial and am starting to feel better. I am grateful that the effects are reversing and my eyesight is almost back to normal. What a strange ride…. another post for sure.

    See you guys soon!
    Michelle

    #93798
    marions
    Moderator

    We always record the event. Most likely already you know, that you can view the 2016 conference with this link:

    http://cholangiocarcinoma.org/misc/2016-cholangiocarcinoma-foundation-annual-conference/2016-in-review/

    We have outgrown our original venue (University of Utah) and have moved this year’s conference to the Salt Lake City downtown Marriott. All in all we expect 300 plus people to attend. This includes researchers, physicians, Pharmaceutical Industry, patients and caregivers.

    More soon.

    Hugs
    Marion

    #93797
    lainy
    Member

    AND, my son from another MUM, next year for both of us!!!!!!!!!

    #93796
    gavin
    Moderator

    Great news!! Hope that you will all have a great time. Actually, I know that you all will!

    And yes, I agree with Catherine, pics please. And a video as well like last year!

    Hugs,

    Gavin

Viewing 15 posts - 1 through 15 (of 18 total)
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