So frustrated

Dianne,
The compazine was the only thing that worked for me. Hope things improve soon for your family.
Lisa

Dianne, just a suggestion that you never add or cut on an RX without calling the ONC.
CC is so strange, yes strange and rare, you want to make sure you get OKs from the ONC.

Dianne-

I dot not have CC, my mother did. However, I can relate in this topic odly because I too took Reglan. When I had my daughter I for some reason quick producing breastmilk and the doctor prescribed me Reglan. It was supposed to help increase breastmilk. So very odd, I know. However, I took it for 2 weeks hoping my system would adjust and it would work. I was absolutley miserable, with diziness, blurry vision, nausea and just yucky. It was so bad, I could sit 5 feet from the tv and couldn’t make out what was on. I couldn’t drive and just felt completely out of it. I did quit taking it and felt much better. Not long after that was when the commercial came out that Reglan was linked to Tardive Dyskensia (not sure on spelling). Anyway, sorry if this didn’t help at all, I just know I didn’t feel even close to “normal” when I took it for the short period of time. Hope you can get the information you’re looking for.

God Bless,
Ash

I understand. We made my son go immediately and get a card. I use to have such a skeptical attitude regarding the true medicinal use. I am now a true believer and a huge supporter after having seen the remarkable results. And like your friend, I will do anything to help my son.

My son had the same issues. His weight loss was drastic and quick. He tried all of the natural path and pharmaceutical options but nothing worked and he continued losing. We live in Ca. and a friend brought over a vaporizer with marijuana. Within 10 minutes he wasn’t just eating he was enjoying the food and holding it down. Absolutely amazing. There is a pill form that the MD can prescribe. It does not work as quickly or as well but it is available. His Naturopath Doctor said the real thing, as long as grown organically, has numerous benefits beyond nausea control. In my sons case I do believe it truly is medicine as he has not only been able to conquer the nausea but has also gained some weight back. He uses such a small amount at a time you would not know if he didn’t tell you. I hope this helps, just another option.

Dianne…..We see this often on this site. Patients with ascites due to cancer (peritoneal carcinomatosis) also suffer from fatigue or weight loss. The nausea and vomiting may very well be due to the obstruction caused by metastases. Is Chris able to hold down liquids? If so then you might want to purée foods (low salt or no salt) and see how he does. High protein shakes may also help. Often times though the nausea and vomiting can be so severe that only sedation allows for a level of comfort not otherwise achievable. It becomes a bit of a balancing act: no salt and few liquids due to the ascities, little or no solid food due to obstruction and pain and nausea vs. comfort with sedation. But, Dianne, we never know until we try and tweak a bit here and there. It worked for my husband and I wish the same for Chris. Thinking of you and sending all my best wishes your way.

Hugs,
Marion

Gosh, I am so sorry for what Chris is going through. I am at a loss as to why. Hve you talked to the ONC, he would be the one who can help with this. He is taking quite a few different RX could one of them be causing the nausea? I think a talk with the ONC is in order. Wishing you the best and I hope they can find an answer to this. Be strong!