March 11, 2010 at 2:18 am #35173
That is just great news. Teddy had a Whipple as his cancer was in his bile ducts but he was Stage ! with that also. From the beginning he has seen an Oncologist every other month with LABS monthly. I had surgery for another rare Cancer October 1st, using the same Oncologist and for me its every other month as well with LABS every other month. He has an MRI every 6 months.
Your news is great and keep up the good news, we love it!!!March 11, 2010 at 2:00 am #35172
ehern…what wonderful news. I don’t think that your upcoming scheduled scans are out of the usual. Congratulations on being diagnosed at such an early stage. From what I have learned: other then not contracting this cancer at all, stage I is the absolute best place to be. You have a fantastic outlook and I am thrilled for you.
Have some fun enjoying life.
MarionMarch 11, 2010 at 1:43 am #35171
Hi Everyone, God is good we went to the Dr. today Got the results from my MRI and we got great news the Dr said no signs of Cancer blood work looks great. Now we will go back in 6 months for another MRI if that is good will not have to go back for a year ( that is a little scary). Not for sure I am ready to wait a whole year to be checked. I am just wondering if we have any other members that are a stage 1 Cholangiocarcinoma, would like to hear from you if so. I am just wondering because i am my surgeons 2nd case off stage 1 Cholangiocarcinoma in 17 years and the 1st patient for my oncologist.February 21, 2010 at 1:37 pm #35170
Hi EJHERN and I will add more about the itching. Teddy’s started on his arms and chest and we thought he was developing an allergy to detergent, tomatoes, etc. This went on for about 2 weeks and he finally had a blood test and when we got the results 2 days later he was starting to jaundice. This does not mean something is going on with you! It simply means you might want to get a blood test to ease your mind. It is only 1 symptom and not everyone gets it. As for the mind troubling should I have had chemo question, don’t think about shoulda, coulda that is past and it will not help to dwell on it. Teddy’s doctors (4 of them) told him the same thing about chemo as his was located in the bile duct valve. By the way, they had to cut the head of the pancreas to get to the CC and we were told at that time not to be surprised if he did get diabetes. He did not and we were thankful for that. This CC is so different with each person and each person reacts so differently with CC. Please let us know how your MRI goes in March. Good luck flying your way.
P.S. If your itching is really bad try using some ice packs where it itches most and we found a cream at Walgreens/CVS called Sarna and that worked very well but you can only use it about 10 days as it is very strong.February 21, 2010 at 1:19 pm #35169ashleyParticipant
Itching is also a telltale sign of PSC – which is a disease with scaring/inflamation of the bile ducts which then leads to a higher incidence of CC. it is not uncommon to be diagnosed with PSC then later have it lead to CC – this was the case with my mother. Just wondering if anyone diagnosed you with PSC first?
ashleyFebruary 21, 2010 at 12:58 pm #35168darlaParticipant
Yes, many have reported itching as a symptom of CC. If you use the search function you should find many posts on this. Although my welcome is a little late coming, it is sincere. I am sorry you have to be part of this group, but glad you have found it as it is the best place to get answers and also support and encouragement.
Good luck with the scan in March. I will be hoping for the best results. Keep coming back and let us know how you are doing.
DarlaFebruary 21, 2010 at 6:33 am #35167
Hi to all again, I was just wondering if itching would have anything to do with CC. In the past few weeks a have had itching in diffrent areas of my body and was wondering if anyone with bile duct cancer has had the same problem. My next MRI March 2. June 2008. Dr removed the gallbladder and 40% left lobe of liver said he had a 2 inch clear margin, no chemo or radiation. My scans have been good until the last couple showing spots on the liver.January 29, 2010 at 1:39 pm #35166cherbourgParticipant
A warm welcome to you and your wife. I’m sorry you had to find us but am very glad you did!
I’m glad you’ve decided to stay with us! I believe knowledge is power and you have to be proactive when dealing with disease. You will find a wealth of knowledge and some of the most caring and compassionate people on the planet here on this site!
There is a search engine at the top of the page that you can use to search questions, key words and even posts of individual posters.
We are here for you and your wife! Come often and NEVER hesitate to ask anything.
Many hugs and much love!
PamJanuary 29, 2010 at 3:27 am #35165mlepp0416Participant
My Tom already had Type 2 diabetes long before he was diagnosed with CC so can’t help you out there.
MargaretJanuary 29, 2010 at 12:17 am #35164
der kuchen posted it on this very same subject, today. And, we have seen others on this board with both, diabetes and CC. I am hoping for some responses coming your way.
MarionJanuary 29, 2010 at 12:02 am #35163
I forgot ask one thing. Has anybody been diagnosed with Diabetes since your resecetions? I was diagnosed with it last year 1 yr after my surgery. I am currently on pills to take care of it.January 28, 2010 at 11:58 pm #35162
Hi ejhern….I like what Kris said: Stay hopeful and realistic.
Good luck and best wishes,
MarionJanuary 28, 2010 at 11:53 pm #35161
OMG thank you all for your uplifting prayers and thoughts. My wife and I are very grateful for all your suggestions we will be asking to go for a 2nd opinion tomorrow. We did ask the Dr’s last year why Chemo was not offered and they said they don’t have a chemo that works we did not like that answer but accepted it. Now we believe we want to check with MD Anderson to see what they say and what they can offer and go from that. I have some people telling me why are you reading all that stuff just stay positive. I tell them I am learning what I need to know on this awful disease that it is so rare and even more rare that it was found early. I will be staying with the foundation, it is a wonderful site that offers good information uplifting inspiration and hopefully one day I can help someone the same way you all have helped me & my wife. I will stay in touch to let you know what I find out. Thank you againJanuary 28, 2010 at 8:55 pm #35160
Hi Sue and congratulations on your anniversary! You know how we all love the great news. Have you noticed we are getting more and more good/hopeful news??? We are so happy for you!January 28, 2010 at 8:44 pm #35159scragotsMember
This is Sue. Yes, tomorrow is my third anniversary from my resection. As far as I know, I remain cancer free, so there IS hope. I was actually Stage 2, but had clean margins and no chemo or radiation. I have always wondered if I should have insisted on it, but the doc was adamant that there was simply nothing to hit with the chemo. So far, I am happy with that decision. Ask me again next year. Just stay on top of things and try not to worry too much until there is really something to worry about. And yes, I KNOW how stupid that sounds. Just try to think about how lucky you have been finding it early. Hopefully it’s just leftover from the surgery…scar tissue or something like that.
Ask all of your questions…people here are wonderful and try to answer anything. And believe me, there have been many things asked that can only be answered by us!!!
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