Stage 4 cancer…Cholangiocarcninoma….My heart broke.
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Maggie, I’m so sorry to hear the story of your dad’s CC and his quick death. My dad also passed away in just a few days after diagnosis from another type of cancer, with little advance warning. We had no time with him to talk as he was put on a respirator after problems during the biopsy, due to his heart stopping while in surgery. I lost my superman dad as well…..as I was also, “Daddy’s little girl.” So, , I know a little of what you are feeling right now and how hard it is to comprehend this happening so quickly. Nothing can prepare you for this. I hope that as time goes on, you can find some comfort. As KrisV said, your dad can still help in the research for a cure for CC by filling out the forms for him and if there is any biopsy material left, requesting it be sent as well. For all of us with CC or with a love one with CC, it woiuld be a gift from your dad.
Julie T
Maggie
I was so sad reading your post and my heart breaks for you. My wee dad was diagnosed 7 weeks ago after going into hospital with gallstones … He’s now home with palliative care. I am also just new to this site. I am sending you lots of hugs at this devastating time. It’s so cruel that you and your family need to endure this. I hope you find strength to work your way through this horrific ordeal. Stay strong.
Carol xxxDearest Maggie –
Welcome to the best family and really none of us want to be a part of it. Six days instead of six months is terrible to have to deal with something like this. I just lost my husband on April 30th to this disease. He had been diagnosed in May of 2013 and had surgery in June. Chemo then chemoradiation and he had been cancer free for two months shy of 2 years when suddenly it returned. It was found on a CT scan take for a totally different reason. Initially they thought it was something else. Then he had a biopsy on April 21st when we found for sure it was a metastatic cancer. I finally got someone to read the pathology report on the 27th and found it was the cc back. He passed on the 30th.
I am so very thankful that he went as quick as he did rather than suffered through so much pain and indignity. It does leave you wondering and saying “what if” for a long time afterwards. In encourage you and your family to still get in contact with your local hospice, even though he never utilized their services they will have support groups and such as needed.
And you dad can still help, make sure you complete the Patient Registry for him and you can even look into the Mayo study as they are looking for people who have the cc but also for people who do NOT. My husband’s entire family signed up for it and I made sure that the biopsy tissue from the last round was sent to the study.
We are always here.Love and Hugs,
KrisVDear Maggie,
I am so sorry for your loss. You, your mom and all of your family have my deepest sympathy. I truly know how you feel and what you are going through. My husband’s situation was much like your dad’s. He died 7 weeks after the first indications of anything being wrong and 10 days after his diagnosis of CC. He too was originally given 6 months and was to come home with hospice, but died before that could be arranged. I know this is no consolation, but want you to know you are not alone.
I too had so many questions but agree with Lainy in that all we really know is that we don’t have the answers . Hopefully in the future that will change. Seems like it is one step forward and two steps back with this disease.
I take some comfort in the fact that my husband did not suffer too long from this terrible cancer and that at least he is free of this and no longer in pain. I’m hoping you will be able to do the same.
Keep your dad with you in your heart and all the memories of the years you had with him.
Thinking of you and your family and hoping you will all find your way through this sad and trying time.
Hugs,
DarlaMaggie,
I am so very sorry for your loss. Many of us wonder what causes CC. This foundation and others are raising funds for awareness advocacy and to fund tumor banks and research specific to CC. They are making good headway and we are hearing more and more stories of successful treatment options. There is much work to be done to figure out this highly complex cancer and, unfortunately, it is too late for your father. That saddens me, but there is also hope for many going forward.
I wish you peace.
Debbie
Dear Maggie, I am so very sorry about your Dad, who could move the World for you! Sadly, about all we really know for sure is that we don’t know enough about this CC Monster. It is silent until almost too late, but since our Board began 10 years ago, we have made some strides and we have had some Miracles. Please accept my deepest sympathies for your family.
I’M STILL HERE
I’m at your side each night and day,
In your heart is where I’ll stay.
You can feel, see or hear, I am not gone, I’m always near.
I’m the colorful leaves when fall comes round,
The pure white snow that blankets ground.
I’m the first bright blossom you’ll see in Spring.
The first warm raindrop that April will bring.
I’m the first ray of light when the sun starts to shine,
And you’ll see that the face in the moon is mine.
I’ll whisper your name through the leaves on the trees,
And you’ll feel my presence in the soft summer breeze.
I’m the salty tears that flow when you weep,
And the beautiful dreams that come while you sleep.
I’m the smile you see on a baby’s face.
Just look for me, I’m every place!On April 14th 2015, My father went to the ER for stomach pains. He had been having on/off again pains in his stomach for about 2 months. But, the pain seemed to be a lot worse this day. He was putting up a fence on Sunday and having a hard time…which if you knew my dad, he could do ANYTHING! Monday he went to work, and came home not feeling well. Tuesday, it was to the ER. They told him that he looked yellow and if he had any liver problems….We said NO. He just had his liver Bilirubin testing in Feb for his diabetes and it was perfect! There was no way something was wrong w/ his liver. Wednesday, we found out that he was in acute liver failure…Wait what? That they saw something on the CT scan. 2 shadows. Dumb…It could be anything. Thursday, a biopsy of the liver. Cancer. What kind? Is it bad? What do we do? No answers. Until Friday April 17th 2015 6:05pm. The Dr. walked in. I was with my son and my mother (his wife) She asked my son (10 years to leave the room) and then she says Stage 4 Cancer. Cholangiocarcinoma. There was nothing we could do. It has metastasized his liver. No transplant, no treatment could cure him. I was daddy’s little girl losing her dad-her superman-her hero-words can not express what it felt like to hear-“we can not do anything” “hospice” I was so confused how I could have a strong dad putting up a fence 5 days ago and planning a fishing trip memorial weekend, to hearing he has 6 months. Saturday April 18th. He was going to come home to die. Hospice was getting his meds together. But, he was in to much pain. He wanted to come home more than anything. Sunday April 19th. All the kids-sister/brothers-his dad were all there at that hospital. He was cutting up laughing-making all the nurses laugh-even on his death bed he was making sure we were all ok, that we laughed with him-NOT CRYING. April 20th 2015. 6 days after being admitted My dad-My hero-My superman went with our lord at 3:30pm.
What happened to 6 months? What happened? How can this cancer that I have never heard of take my dad this fast? I have studied and studied this since he was diagnosed. I keep thinking maybe it was a medication he was on…He took Lipitor for 6 years…could this be the cause? I know I am reaching….but this is all I can do now. Is study more and see if I can help in anyway. I have read a lot of the symptoms of people diagnosed…he really didn’t have ANY-until the last couple of months, and even then it was bearable. He was never even nauseated! So many questions-and really I still have no answers. Just missing him so.
I know if my heart this is God’s Time.
Thomas S. Reynolds 52 Jan 8 1963-April 2oth 2015
Maggie Lollar-Looking for answers
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