Stage IV – Bile duct/liver/lymph nodes

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  • January 15, 2008 at 3:23 am #18778
    dzkh
    Member

    Does the live chat work on this? When I go to it, i am the only person there…

    January 15, 2008 at 3:15 am #18777
    jmoneypenny
    Member

    I’m so sorry you’re going through this, and I just wanted to chime in that the progression of this disease is very unpredictable, so don’t get discouraged by some of the stories of fast progression (like my mother’s) – everyone is different and the doctors really don’t have a clue sometimes, so don’t give up hope. What are your dad’s symptoms now, and why do you think he’s getting worse?

    A second opinion may also be of help, if your dad is up for it. Many people on this board beat the odds – or at least prolong their lives substantially – after getting a 2nd opinion.

    I’m not an expert on cc, so maybe someone can correct me on this, but it seems that Klatskins tumors have a better prognosis than most. Again, I could be wrong, but that’s the impression I’ve gotten.

    Much luck and love to you and your dad,

    Joyce

    January 15, 2008 at 2:57 am #18776
    dzkh
    Member

    Thanks so much for your replies.

    He had a drain put in that is helping and he might get some chemo finally.

    I am afraid he is getting worse fast.

    Can anyone share the progression and what has happened with a loved one?

    January 13, 2008 at 10:37 pm #18775
    annshal
    Spectator

    I agree with Charlene. Each time my husband got jandiced it was because the stents had become blocked. In fact the Dr. told me to watch for any yellowing of his eyes which means jaudice and a good possibility of blocked stent(s).
    Irene (Bob’s wife)

    January 13, 2008 at 10:01 pm #18774
    fairydrop
    Member

    The only thing I can think is that the stents are clogged. Did they do any type of treatment such as photo dynamic therapy or radiation when they placed his stents?
    My husband had the exact same thing and it was because the stents were clogged. If your Drs. won’t help you, get another opinion. good luck,
    Charlene

    January 12, 2008 at 3:21 am #1033
    dzkh
    Member

    I just joined this site and am looking for some feedback.

    My dad was diagnosed about 8 weeks ago with a klatskin tumor that is on the liver and the lymph nodes. No surgery option. We were told chemo would prolong lofe 6-12 months.

    He had plastic stents put in in November and Metal stents in December. After 6 weeks, the jaundice is still not any better and the itching has begun.
    They have not started chemo b/c of the jaundice.

    Anyone ever been in this situation?

    He seems to be shutting down and the doctors don’t say anything.

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